Europe health databases & datasets

Institute of Health Information and Statistics (ÚZIS ČR) — National Health Information System

Ústav zdravotnických informací a statistiky (ÚZIS ČR), Ministry of Health of the Czech Republic Established in 1960, ÚZIS maintains the Czech Republic's National Health Information System and 12 national health registries covering cancer, hospitalization, reproduction health, cardiovascular surgery, occupational diseases, and other conditions. Data is published in the Czech Health Statistics Yearbook and provided to researchers through formal requests. Research database Credentialed HDB-0249

National Health Insurance Fund (NEAK)

Nemzeti Egészségbiztosítási Alapkezelő (NEAK), Ministry of the Interior of Hungary Hungary's state health insurance fund manages the universal healthcare system and maintains administrative data on publicly funded health services, pharmaceuticals, and medical devices. NEAK publishes monthly traffic data, utilization analyses, and waiting list statistics. Open dataset Free registration HDB-0250

National Institute of Public Health (NIJZ)

Nacionalni inštitut za varovanje zdravja (NIJZ), Ministry of Health of Slovenia NIJZ is Slovenia's principal public health authority maintaining health registries and databases on communicable diseases, vaccinations, occupational accidents, hospitalization and outpatient services. Data collection uses the automated e-transfer portal ePrenosi with real-time data validation and feedback to providers. Research database Credentialed HDB-0251

Croatian Institute of Public Health (HZJZ)

Hrvatski zavod za javno zdravstvo (HZJZ), Ministry of Health of Croatia HZJZ is the official carrier of health statistics in Croatia and maintains national registries on cancer, diabetes, communicable diseases and occupational diseases. The Institute publishes annual health-statistical yearbooks and thematic epidemiological reports used by policymakers and researchers. Research database Open access HDB-0252

National Health Information Center (NCZI)

Národné centrum zdravotnických informácií (NCZI), Ministry of Health of the Slovak Republic NCZI is Slovakia's state-funded organization administering the National Health Information System and national health registries covering administrative and clinical data from healthcare providers. The center standardizes health informatics, compiles health statistics and collaborates internationally with WHO, OECD and EUROSTAT. Research database Credentialed HDB-0253

National Health Information System (NHIS)

Ministry of Health of Bulgaria Bulgaria's centralized electronic health record platform storing and exchanging medical information among healthcare stakeholders with standardized data formats and unified medical terminology coding. As of July 2026, the system contains 764.7 million electronic health documents, 204+ million e-examinations, and provides patient access through the eZdrave portal. Open dataset Free registration HDB-0254

Institute of Public Health of Serbia 'Dr Milan Jovanović Batut'

Institut za javno zdravlje Srbije 'Dr Milan Jovanović Batut', Ministry of Health of Serbia Serbia's expert public health institution maintains databases on health and healthcare utilization, national health registries, and conducts population health surveys. The Institute provides independent research on public health issues and technical guidance to the Serbian government on health policy and services planning. Research database Credentialed HDB-0255

Ukraine National eHealth System

Ministry of Health of Ukraine Ukraine's centralized national eHealth system operating since March 2019 and serving 36.5+ million users, connecting healthcare institutions and providers via a HL7 FHIR-based infrastructure. The system manages electronic health records, e-prescriptions, e-referrals and provides MedData integration for administrative and clinical data from the healthcare system. Open dataset Free registration HDB-0256

Estonian e-Health Foundation — National Health Information System

Estonian e-Health Foundation (EeHF), Ministry of Social Affairs of Estonia Estonia's centralized national health information system, operational since 2008, securely stores and retrieves 40+ million health documents from diverse healthcare providers via the e-Patient portal accessible through public e-ID. The Health Board (Terviseamet) registers healthcare professionals and maintains communicable disease surveillance alongside the e-Health Foundation's management of integrated provider systems and nationwide health registries. Open dataset Free registration HDB-0257

National Health Service (VMNVD) — e-Health System

Nacionālais veselības dienests (VMNVD), Ministry of Health of Latvia Latvia's national e-health system (www.eveseliba.gov.lv) provides patients and medical personnel authorized access to medical information with WHO security certification. VMNVD maintains registries of medical institutions and professionals, manages electronic data exchange including cross-border health data access, and publishes health data analysis for payment and planning purposes. Open dataset Free registration HDB-0259

Turkish Statistical Institute (TÜİK)

Turkish Statistical Institute (Türkiye İstatistik Kurumu) Turkey's official statistical authority publishing comprehensive demographic, epidemiological, and health statistics including mortality data, morbidity indicators, and healthcare utilization. Data is freely accessible through the institute's Data Portal (Veri Portalı) and thematic statistical tables. Open dataset Open access HDB-0260

Turkey Demographic and Health Survey (TDHS)

Hacettepe University Institute of Population Studies A nationally representative population and health survey conducted at five-year intervals since 1993 by Hacettepe University, providing data on fertility, maternal and child health, family planning, and early childhood development across Turkey. Microdata is available to researchers through formal data-sharing agreements. Research database Credentialed HDB-0261

Turkey Ministry of Health Health Statistics Yearbook

Turkish Ministry of Health (T.C. Sağlık Bakanlığı) Annual official yearbooks published by the Ministry of Health containing detailed health statistics on mortality, morbidity, disease prevention, healthcare facilities, medical personnel, and health financing across Turkey. Data is freely available through the ministry's website and the Sağlık Bakanlığı Open Data Portal (acikveri.saglik.gov.tr). Open dataset Open access HDB-0267

WHO Health for All Database (HFA-DB)

WHO Regional Office for Europe Core health statistics database of the WHO European Region containing approximately 1,450 indicators across demographics, health status, determinants, and health care resources for 53 European member states. Data spans from 1970 to present and is updated annually based on member state reporting, allowing integrated access and dynamic cross-country comparisons. Open dataset Open access HDB-0268

ECDC Surveillance Atlas of Infectious Diseases

European Centre for Disease Prevention and Control (ECDC) Interactive mapping tool providing access to surveillance data on infectious diseases across EU/EEA member states. Users can browse disease data by country and time period, create custom maps and tables, and export results in multiple formats. Open dataset Open access HDB-0269

European Cancer Information System (ECIS)

European Commission Joint Research Centre (JRC), in collaboration with European Network of Cancer Registries (ENCR) Web-based tool aggregating cancer burden data from approximately 150 population-based cancer registries across 34 European countries, covering 58 cancer sites. Provides incidence, mortality, prevalence, and survival estimates updated as new registry data become available. Research database Open access HDB-0271

Euro-Peristat: European Perinatal Health Report

Inserm (French National Institute of Health and Medical Research), Paris; funded by European Commission European perinatal surveillance network coordinating data collection on mothers' and newborns' health outcomes from 31 countries across vital statistics, medical birth registers, and hospital discharge data. Publishes periodic European Perinatal Health Reports (2008, 2013, 2018, 2022) and national-level data on stillbirth, preterm birth, neonatal mortality, and socioeconomic health disparities. Research database Open access HDB-0272

ESPAD: European School Survey Project on Alcohol and Other Drugs

Coordinated by independent research teams across Europe (40+ participating countries) Largest cross-national research project on adolescent substance use in Europe, collecting comparable data from 15–16-year-old students every four years since 1995 across 37+ countries. The data portal provides access to trends in tobacco, alcohol, and illicit drug use alongside mental well-being, gaming, and social media use indicators. Open dataset Open access HDB-0274

European Social Survey (ESS) with Health Modules

European Research Infrastructure Consortium (ERIC); coordinated from multiple European research institutions High-quality open-access survey of public attitudes, beliefs, and behavior across 30+ European countries conducted biennially since 2002, with rotating topical modules including dedicated health rounds. Health modules in Round 2 (2004/05) and Round 7 (2014/15) examined health-seeking behavior and social determinants of health inequality, with Round 11 (2023/24) focusing on health inequalities in the post-COVID era. Research database Free registration HDB-0295

CTIS (Clinical Trials Information System)

European Medicines Agency (EMA) CTIS is the European Medicines Agency's system through which sponsors apply to run a clinical trial and manage an ongoing trial across up to 30 EU and EEA countries, launched on 31 January 2022. It replaced EudraCT for new trials and publishes information on individual trials in the EU and EEA through a public search interface. Trial registry Open access HDB-0298

DRKS (German Clinical Trials Register)

Bundesinstitut für Arzneimittel und Medizinprodukte (BfArM) DRKS is the WHO-recognised primary register for Germany, operated by the Federal Institute for Drugs and Medical Devices (BfArM), and registers health-related studies conducted in Germany on human subjects. Its search is publicly accessible and researchers register their studies through a separate registration portal. Trial registry Open access HDB-0319

European Genome-phenome Archive (EGA)

EMBL-EBI and CRG The EGA archives individual-level genomic and phenotypic data from biomedical studies, operated jointly by EMBL-EBI and the Centre for Genomic Regulation. Researchers request datasets from the data access committee of each study, which grants access under the study's consent terms. Open dataset By application HDB-0370

Cegedim Health Data — THIN

Cegedim THIN (The Health Improvement Network) contains longitudinal de-identified primary care electronic health records collected by Cegedim Health Data from practices in several European countries including France, the United Kingdom, Spain, Belgium, Romania and Italy. Pharmaceutical companies, health authorities and academic researchers license it for real-world evidence, drug safety and health economics research. Commercial provider Paid HDB-0371

Insight Health

Insight Health / CompuGroup Medical Insight Health licenses pharmaceutical market data derived from German statutory health insurance claims, covering prescriptions, over-the-counter products, medical devices and hospital records. Pharmaceutical companies, research organisations and health authorities license it for market analysis and health economics research. Commercial provider Paid HDB-0431

TUYZE (Türkiye Health Data Research and AI Applications Institute)

Health Institutes of Türkiye (TUSEB) A government research institute focused on health data analysis and artificial intelligence applications in healthcare, operating three specialized departments: Big Data, Medical Decision Support Systems, and Smart Medical Device Technologies. The institute develops data-driven healthcare solutions and conducts research on Turkish health datasets. Research database Credentialed HDB-0467

Estonian Biobank

University of Tartu, Institute of Genomics The Estonian Biobank is a population-based biobank holding genotype data and health information for a substantial share of Estonia's adult population, run by the Institute of Genomics at the University of Tartu. It stores DNA, plasma and serum alongside linked national health-registry data, and researchers apply for access for approved studies. Open dataset By application HDB-0497

ECRIN Clinical Research Data Sharing Repository

European Clinical Research Infrastructure Network (ECRIN) A Trusted Research Environment operated by ECRIN that supports sharing of anonymised and pseudonymised individual participant data from clinical research studies in compliance with EU legislation. The repository hosts datasets, study protocols, analysis plans, and consent templates to facilitate secure access and meta-analyses across European clinical research. IPD repository Credentialed HDB-0500

EMA Clinical Data Publication Portal

European Medicines Agency A publicly accessible repository of clinical trial data submitted by pharmaceutical companies to support regulatory applications for centrally authorised medicines, including clinical study reports, overviews, summaries, study protocols, and case report forms. Researchers and regulators can access published clinical datasets by registering an EMA account, with options for on-screen viewing or download. Research database Free registration HDB-0505

Batut (Institute of Public Health of Serbia "Dr Milan Jovanović Batut")

Serbian Ministry of Health Batut maintains Serbia's health indicators database and disease registries, collecting data on health and healthcare utilization from the national health system. The institute provides a Data Presentation System enabling users to access health statistics and indicators by geographic area and disease. Research database Open access HDB-0506

Public Health Center of Ukraine

Ukrainian Ministry of Health The Public Health Center maintains Ukraine's epidemiological surveillance systems and disease registries tracking infectious diseases including measles, tuberculosis, and HIV/AIDS. The center collects operational epidemiological data through weekly reporting mechanisms and coordinates national immunization programs. Research database Open access HDB-0507

EHIF (Estonian Health Insurance Fund)

Estonian Government The Estonian Health Insurance Fund (Tervisekassa) administers Estonia's social health insurance system and maintains an administrative claims database covering health service contacts, prescription medicines and medical device records. Its data are integrated into Estonia's eHealth infrastructure and the national health portal (Terviseportaal), and researchers apply to the fund for access. Research database By application HDB-0508

SPKC (Centre for Disease Prevention and Control, Latvia)

Latvian Ministry of Health SPKC maintains Latvia's Health Statistics Database and infectious disease registries including HIV/AIDS, tuberculosis, and vaccination records. The center produces epidemiological bulletins and annual statistical reports on infectious and parasitic diseases alongside patient-reported experience measurements and healthcare facility performance indicators. Research database Open access HDB-0510

e-zdrowie (Polish Health Information Portal)

Polish Ministry of Health / Centre for e-Health e-zdrowie serves as Poland's central health information platform providing medical registers, health data reports, and statistics from the National Health Fund (NFZ) and other national health institutions. The portal includes the Medical Registers Platform for electronic document exchange and access to comparative health analyses covering insurance, providers, and waiting times. Open dataset Open access HDB-0511

Maps of Health Needs (Mapy Potrzeb Zdrowotnych, Poland)

Polish Ministry of Health Maps of Health Needs is Poland's interactive health data platform consolidating data from multiple national health sources including NFZ, NIZP-PZH, Centre for e-Health, and the Central Statistical Office. The platform enables cross-sectional analysis of health data and healthcare capacity at regional and local levels. Open dataset Open access HDB-0513

EU Trials Tracker

Bennett Institute for Applied Data Science, University of Oxford A monitoring platform tracking compliance with European Union clinical trial result reporting requirements, which mandate that trials on the European Union Clinical Trials Register (EUCTR) report results within one year of completion. The tracker displays reporting percentages for sponsors and identifies institutions meeting or falling behind on reporting obligations. Trial registry Open access HDB-0514

OMON (Overview of Medical Research in the Netherlands)

Central Committee on Research Involving Human Subjects (CCMO) A centralized Dutch registry consolidating clinical trial and medical research data from multiple sources including the former National Trial Register (NTR), ToetsingOnline, the Research Portal, and CTIS public data. The platform serves both research participants seeking studies to join and researchers needing to register, submit and manage medical research. Trial registry Open access HDB-0544

EUROCARE: Cancer Survival in Europe

Istituto Nazionale dei Tumori (National Cancer Institute), Milan; Istituto Superiore di Sanità (Italian National Institute of Health), Rome EUROCARE is a collaborative study of population-based cancer survival in Europe, running since 1989 and coordinated by the Istituto Superiore di Sanità, which pools and standardises data contributed by national and regional cancer registries. Its published analyses compare survival trends and between-country variation, and aggregated results are freely available from the project website. Research database Open access HDB-0560

InGef Research Database

InGef — Institut für angewandte Gesundheitsforschung Berlin InGef, the Institute for Applied Health Research Berlin, maintains an anonymised research database of German statutory health insurance billing data covering outpatient and inpatient care, drug prescriptions and sociodemographics, longitudinally linked over several years. It is used for health-services research and pharmacoepidemiological studies, which InGef conducts on commission for industry, academic and public clients. Commercial provider Paid HDB-0563

ISTAT Health for All - Italia

ISTAT (Italian National Institute of Statistics) Health for All – Italia is an interactive indicator database published by ISTAT, the Italian national statistics institute, covering health status, healthcare resources, service use and social determinants. Indicators can be browsed and downloaded at national and regional level without registration. Open dataset Open access HDB-0564

Ministero della Salute Open Data Portal

Ministero della Salute (Italian Ministry of Health) The open data portal of Italy's Ministry of Health publishes administrative datasets on healthcare personnel, hospital beds, hospital admissions, medical equipment and devices. Files are downloadable without registration in CSV, JSON and XML. Open dataset Open access HDB-0565

AIFA OsMed - Medicines Utilization Monitoring Centre

AIFA (Italian Medicines Agency) OsMed is the medicines-use monitoring service of AIFA, the Italian Medicines Agency, reporting pharmaceutical consumption and expenditure in Italy. The interactive interface allows queries and national-to-regional comparisons without registration. Open dataset Open access HDB-0566

AIRTUM - Italian Association of Cancer Registries

AIRTUM (Associazione Italiana Registri Tumori) AIRTUM is the association coordinating Italy's population-based cancer registries and maintains the pooled national dataset of cancer incidence, mortality and survival. Aggregated figures are published openly; record-level data are obtained from the member registries under agreement. Research database Credentialed HDB-0567

RIAP - Registro Italiano di ArtroProtesi (Italian Arthroplasty Registry)

ISS (Istituto Superiore di Sanità) / Ministry of Health RIAP is Italy's national arthroplasty registry, run by the Istituto Superiore di Sanità for the Ministry of Health, recording hip, knee, shoulder and ankle joint-replacement procedures and the implants used. It supports device safety surveillance and post-market monitoring; data are made available to participating regions and researchers through the registry. Research database Credentialed HDB-0568

Regione Lombardia Open Data Portal - Health

Regione Lombardia (Lombardy Regional Government) The Lombardy regional government's open data portal publishes datasets from the regional administration, including health and epidemiological data drawn from its regional data warehouse. Datasets are downloadable without registration; licence terms are stated per dataset and are not specified for all of them. Open dataset Open access HDB-0569

Emilia-Romagna ReportER - SISEPS Health Data Portal

Regione Emilia-Romagna (Emilia-Romagna Regional Government) ReportER is the public reporting interface to SISEPS, the health and social policy information system of the Emilia-Romagna region. It publishes regional health indicators for consultation without registration. Open dataset Open access HDB-0570

National Registry of Congenital Malformations (RNMC)

ISS (Istituto Superiore di Sanità) / Ministry of Health The National Registry of Congenital Malformations, held at the Istituto Superiore di Sanità, records structural birth defects detected prenatally, at birth and during the first year of life. It underpins national surveillance and contributes to European birth-defect monitoring; data are obtained from the registry under agreement. Research database Credentialed HDB-0571

EpiCentro - Epidemiological Information Gateway

ISS (Istituto Superiore di Sanità) EpiCentro is the epidemiology portal of the Istituto Superiore di Sanità, giving access to Italy's surveillance systems, disease registries and epidemiological reporting on communicable and non-communicable disease. Surveillance outputs and reports are published openly. Open dataset Open access HDB-0572

PASSI - Adult Behavioural Risk Factor Surveillance System

ISS (Istituto Superiore di Sanità) PASSI is a continuous behavioural risk factor surveillance system run by the Istituto Superiore di Sanità, which interviews adults aged 18–69 about health determinants and preventive care. Results are published as national, regional and local indicators without registration. Open dataset Open access HDB-0573

CMBD / RAE-CMBD

Ministerio de Sanidad, Consumo y Bienestar Social RAE-CMBD is Spain's hospital discharge database, compiled by the Ministry of Health from the minimum basic data set reported by National Health System hospitals. Aggregate statistics on admissions, procedures and outcomes are published; record-level extracts are supplied to authorised requesters. Open dataset Credentialed HDB-0574

BIFAP

Spanish Agency for Medicines and Medical Devices (AEMPS) BIFAP is a pharmacoepidemiological database of primary care electronic medical records, operated by AEMPS, the Spanish agency for medicines and medical devices. It is used for drug safety and drug utilisation research; researchers apply to the agency for access. Research database By application HDB-0575

SIDIAP

Catalan Health Institute (Institut Català de la Salut) SIDIAP holds primary care electronic health records from the Catalan Health Institute's practice network, including diagnoses, prescriptions, laboratory results and vaccinations. Researchers apply for access for epidemiological and health services research. Research database By application HDB-0576

REDECAN

Spanish Network of Population-Based Cancer Registries REDECAN is the network of Spain's population-based cancer registries, including childhood cancer registries, which pools regional data into national incidence, survival and prevalence estimates. Aggregate results are published openly. Open dataset Open access HDB-0577

Spain Health Survey (ESdE)

Ministerio de Sanidad and Instituto Nacional de Estadística (INE) The Encuesta Nacional de Salud is Spain's national health survey of private households, run by the Ministry of Health with the national statistics institute, covering health status, use of health services and health determinants. Results and microdata are published openly. Open dataset Open access HDB-0578

INE Spain Health Statistics (INEbase)

Instituto Nacional de Estadística (INE) INE, Spain's national statistics institute, publishes the health section of INEbase, covering health status, hospital activity, health professionals, pharmaceuticals and mortality. Tables and microdata are downloadable without registration and are also served through the institute's API. Open dataset Open access HDB-0579

SNS Transparência Portal

Serviço Nacional de Saúde (SNS) / SPMS The Portal da Transparência of Portugal's Serviço Nacional de Saúde publishes operational data on the public health service, including hospital activity, waiting times and emergency department attendance. Datasets are browsable and downloadable without registration and are also served through an API. Open dataset Open access HDB-0580

Destatis Health Statistics

Federal Statistical Office (Statistisches Bundesamt) Destatis, the German Federal Statistical Office, publishes the official national health statistics, covering health status, health expenditure, use of services and healthcare facilities. Tables are available without registration. Open dataset Open access HDB-0581

GePaRD

Leibniz Institute for Prevention Research and Epidemiology – BIPS GePaRD is a claims database held at BIPS, the Leibniz Institute for Prevention Research and Epidemiology, built from the routine data of German statutory health insurers. It is used for pharmacoepidemiology and health services research; studies are carried out in collaboration with the institute under data protection approval. Research database Credentialed HDB-0582

Statistik Austria Health Statistics

Statistics Austria (Statistik Austria) Statistics Austria publishes national health data through its STATcube database and STATatlas interfaces, covering health status, health expenditure and healthcare facilities. Overview tables are free to consult; detailed extracts require a registered or paid account. Open dataset Free registration HDB-0583

NICER

National Institute for Cancer Epidemiology and Registration NICER is the Swiss foundation that coordinates the cantonal cancer registries and holds the harmonised national cancer dataset; since 2018 it has been mandated to carry out the tasks of the National Cancer Registration Agency (NKRS) under the Cancer Registration Act. It publishes national incidence and mortality statistics and supplies data to researchers on request. Research database Credentialed HDB-0584

Swiss National Cohort

University of Bern, Epidemiology, Biostatistics and Prevention Institute (EBPI) The Swiss National Cohort is a longitudinal study of the resident population of Switzerland built by linking census records to mortality and migration follow-up. Researchers apply for access for studies of health inequalities, mortality and health policy. Research database Credentialed HDB-0585

Swiss Federal Statistical Office Health Statistics

Federal Statistical Office (Bundesamt für Statistik / Office fédéral de la statistique) The Swiss Federal Statistical Office publishes the national health statistics, covering health status, chronic disease, health determinants, use of services and health expenditure. Tables are available without registration as part of the official statistics programme. Open dataset Open access HDB-0586

Odissé

Santé publique France Odissé is the open data platform of Santé publique France, publishing public health indicators and disease surveillance data. Data are available through a web interface and an API without registration. Open dataset Open access HDB-0587

Data.DREES

DREES (Direction de la Recherche, des Études, de l'Évaluation et des Statistiques) Data.DREES is the open data platform of DREES, the statistical directorate of the French health and social affairs ministry, covering the healthcare system, social protection, long-term care, disability and pensions. Datasets are downloadable and explorable without registration. Open dataset Open access HDB-0588

CASD (Centre d'Accès Sécurisé aux Données)

CASD The Centre d'accès sécurisé aux données gives researchers controlled access to French public statistical and health datasets inside an isolated secure environment. Access is granted per project on application and all use is audited. Research database Credentialed HDB-0589

INCa National Cancer Registry

Institut National du Cancer (INCa) The Institut national du cancer publishes French cancer data covering incidence, screening, treatment activity and survival. Aggregated indicators are open; access to detailed data runs through application to the institute. Research database By application HDB-0590

Belgian Cancer Registry

Belgian Cancer Registry Foundation The Belgian Cancer Registry is the national registry that collects every new cancer diagnosis in Belgium, coordinating reporting across Flanders, Wallonia and Brussels. Aggregate statistics are published; researchers apply to the registry for data. Research database By application HDB-0591

Netherlands Heart Registration (NHR)

Netherlands Heart Registration The Nederlandse Hart Registratie collects data on invasive cardiac, electrophysiological and cardiac surgical procedures performed at participating Dutch hospitals. It is used for quality monitoring of cardiac care; researchers apply to the registry for data. Research database By application HDB-0592

Lifestyle Monitor

RIVM (National Institute for Public Health and the Environment) The Leefstijlmonitor is a partnership led by RIVM that tracks lifestyle and health behaviour in the Dutch population through recurring surveys, covering smoking, alcohol, diet and physical activity. Aggregated national and regional indicators are published without registration. Open dataset Open access HDB-0621

Forschungsdatenportal für Gesundheit (FDPG)

Medical Informatics Initiative (MII), Germany The German Research Data Portal for Health is the central point of contact through which scientists request pseudonymised patient data and biosamples held by the university hospitals of Germany's Medical Informatics Initiative. Researchers run a feasibility query and then submit a data use application that the participating sites review. Research database By application HDB-0623

ERN-RND Registry

European Reference Network on Rare Neurological Diseases (ERN-RND), hosted by University Hospital Tübingen The ERN-RND Registry collects standardised patient data from the network's expert centres across six groups of rare neurological diseases — ataxias, choreas, dystonias, frontotemporal dementia, leukodystrophies and atypical parkinsonism — and is hosted by University Hospital Tübingen. A Data Access Committee reviews requests from clinicians, researchers, health authorities and patient organisations for aggregated or pseudonymised patient-level data. Research database By application HDB-0626

RD-Connect Genome-Phenome Analysis Platform (GPAP)

RD-Connect GPAP The RD-Connect Genome-Phenome Analysis Platform lets authorised users submit, share and analyse genomic and phenotypic data from rare disease patients and their relatives, to support diagnosis and gene discovery, and is an IRDiRC Recognized Resource. Access requires registration and authorisation as a platform user. Research database Credentialed HDB-0627

SurvStat@RKI

Robert Koch Institute (RKI) SurvStat@RKI is the Robert Koch Institute's public query interface to Germany's notifiable infectious disease surveillance data, reported under the Infection Protection Act. Users build their own queries on cases by disease, region and time period and export the resulting tables without registration. Open dataset Open access HDB-0639

WIdO AOK Research Database

Wissenschaftliches Institut der AOK (WIdO) The WIdO AOK Research Database contains longitudinal claims data from persons insured by the AOK health insurance funds in Germany and is operated by the Wissenschaftliches Institut der AOK (WIdO). It is used for health services research and epidemiology, with access provided through formal research partnerships and project-based requests. Research database By application HDB-0640

Zi Versorgungsatlas

Zentralinstitut für die kassenärztliche Versorgung (Zi) The Zi Versorgungsatlas is a portal operated by the Zentralinstitut für die kassenärztliche Versorgung that provides interactive maps and reports based on nationwide billing data from ambulatory care in Germany. It is used to analyze regional differences in healthcare provision and is accessible to the public and researchers via an online dashboard. Open dataset Open access HDB-0641

HealthData@AT

Gesundheit Österreich GmbH (GÖG) HealthData@AT is a national coordination point for the secondary use of health data in Austria, operated by Gesundheit Österreich GmbH (GÖG), that facilitates access to registries and health system data. It is used for health policy planning and research within the framework of the European Health Data Space. Research database By application HDB-0642

Swiss Health Survey (SGB)

Federal Statistical Office (FSO) The Swiss Health Survey is a recurring survey operated by the Federal Statistical Office that collects data on the health status, health behavior, and healthcare utilization of the Swiss population. It is used for national health monitoring and research, with aggregated results available online and microdata accessible via application. Open dataset By application HDB-0643

Registro Nazionale Malattie Rare (RNMR)

Istituto Superiore di Sanità (ISS) The Registro Nazionale Malattie Rare is a registry operated by the Istituto Superiore di Sanità that collects epidemiological data on rare diseases from regional and interregional registries across Italy. It is used to support national healthcare planning, estimate diagnostic delays, and facilitate clinical research for rare conditions, with data gathered through the participating regional registries. Research database By application HDB-0644

Sistema Informativo Trapianti (SIT)

Ministero della Salute / Centro Nazionale Trapianti The Sistema Informativo Trapianti is an infrastructure operated by the Italian Ministry of Health and the National Transplant Centre that manages data on organ donation, procurement, and transplantation within the Italian National Transplant Network. It provides public statistics on waiting lists, donor declarations, and transplant procedures to support transparency and traceability. Open dataset Open access HDB-0645

Registro Nazionale della Procreazione Medicalmente Assistita (PMA)

Istituto Superiore di Sanità (ISS) The Italian National Registry of Medically Assisted Procreation is maintained by the Istituto Superiore di Sanità and monitors medically assisted procreation activities and centers operating in Italy as mandated by law. It is used to produce annual reports on infertility treatments and success rates and to support research on reproductive health. Research database Open access HDB-0646

SISTRA - Sistema Informativo dei Servizi Trasfusionali

Centro Nazionale Sangue (CNS) SISTRA is an information system operated by the Centro Nazionale Sangue that tracks the production, consumption, and exchange of blood and plasma components across Italian regional transfusion services. It supports the national self-sufficiency program and monitors hemovigilance data to ensure transfusion safety. Research database Credentialed HDB-0647

Osservatorio Nazionale Screening (ONS)

Osservatorio Nazionale Screening The Osservatorio Nazionale Screening is an Italian observatory that monitors the implementation and performance of organized cancer screening programs for breast, cervical, and colorectal screening across the country. It provides annual reports and data intended to support regional health authorities in optimizing prevention strategies. Open dataset Open access HDB-0649

OKkio alla SALUTE

Istituto Superiore di Sanità (ISS) OKkio alla SALUTE is a surveillance system operated by the Istituto Superiore di Sanità that monitors overweight, obesity, and lifestyle habits among primary school children in Italy. It provides periodic data to guide public health initiatives aimed at improving nutrition and physical activity in the pediatric population. Open dataset Open access HDB-0650

Open Data Toscana - Salute

Regione Toscana Open Data Toscana - Salute is a regional portal operated by Regione Toscana that provides open access to healthcare datasets covering health services, demographics, and pharmaceutical consumption. The resource is used for regional transparency and to support independent analysis of local health trends, with data available through open access. Open dataset Open access HDB-0651

Regione del Veneto - I Dati della Salute

Regione del Veneto The portal centralizes health statistics and reports for the Veneto region, covering hospital activity, outpatient care, and health status indicators, and is operated by the Regione del Veneto. It serves as a public resource for monitoring the performance of the regional socio-sanitary system, with access provided through the regional portal. Open dataset Open access HDB-0652

Dati Piemonte - Salute

Regione Piemonte The Piedmont Region operates a regional open data platform hosting datasets on the healthcare infrastructure and services of Piedmont. The platform is used to provide transparent information on health facilities, pharmacies, and regional health planning, with access through the open data portal. Open dataset Open access HDB-0654

INAIL Open Data Portal - Infortuni e Malattie Professionali

INAIL The INAIL Open Data Portal provides open datasets on occupational accidents and professional diseases reported to the national insurance institute, INAIL. The data are used for statistical analysis of workplace safety and are accessible for public download in CSV and JSON formats. Open dataset Open access HDB-0655

Registro Italiano Fibrosi Cistica (RIFC)

Istituto Superiore di Sanità (ISS) The Italian Cystic Fibrosis Registry collects clinical and demographic data on patients with cystic fibrosis from specialized referral centers across Italy and is operated by the Istituto Superiore di Sanità. It is used for epidemiological characterization and clinical research, with data access available to researchers upon formal application. Research database By application HDB-0656

Open Salute Lazio

Regione Lazio - DEP Open Salute Lazio is a portal operated by the Lazio region that provides interactive health indicators and statistics on the region's population, including mortality, hospitalizations, and chronic disease frequency. It is used by health administrators and researchers for health planning and epidemiological monitoring, with access through the portal. Research database Open access HDB-0657

Registro Nazionale Ipotiroidei Congeniti (RNIC)

Istituto Superiore di Sanità (ISS) The Italian National Registry of Congenital Hypothyroidism collects data on infants diagnosed with congenital hypothyroidism through neonatal screening programs across Italy and is operated by the Istituto Superiore di Sanità. The registry is used to monitor incidence, evaluate screening efficiency, and identify potential environmental or genetic risk factors, with access details not described in the provided text. Research database Credentialed HDB-0658

Registro Nazionale Coagulopatie Congenite (RNCC)

Istituto Superiore di Sanità (ISS) The Registro Nazionale Coagulopatie Congenite is a registry operated by the Istituto Superiore di Sanità that collects clinical and therapeutic data on patients with congenital bleeding disorders from specialized centers. It is used to monitor complications and estimate national requirements for plasma-derived and recombinant products. Research database By application HDB-0659

Open Data Regione Puglia - Salute

Regione Puglia The Open Data Regione Puglia - Salute portal hosts open datasets related to the healthcare system in the Puglia region, including facility locations and health service performance, and is operated by Regione Puglia. It is used for transparency and public health analysis, providing data in machine-readable formats such as CSV. Open dataset Open access HDB-0660

Osservatorio Nazionale Autismo (OssNA)

Istituto Superiore di Sanità (ISS) The Osservatorio Nazionale Autismo, operated by the Istituto Superiore di Sanità, maintains a database of services and epidemiological data for Autism Spectrum Disorders across Italian regions. It is used to map diagnostic and care services and to support national surveillance of neurodevelopmental disorders, with access details not specified in the provided text. Research database Open access HDB-0662

Base de Datos Clínicos de Atención Primaria (BDCAP)

Ministerio de Sanidad The Base de Datos Clínicos de Atención Primaria (BDCAP) is operated by the Ministerio de Sanidad and contains pseudonymized clinical information drawn from a representative sample of primary care health records across Spain. It is used for epidemiological research and health system planning, with access granted through formal application of a research protocol. Research database By application HDB-0663

Sistema de Información de Vacunaciones (SIVAMIN)

Ministerio de Sanidad The Sistema de Información de Vacunaciones (SIVAMIN) is operated by the Ministerio de Sanidad and provides interactive access to vaccination coverage data in Spain organized by birth cohorts and regions. It is used to monitor public health immunization goals and is open for public consultation. Open dataset Open access HDB-0664

DGS Estatísticas de Saúde

Direção-Geral da Saúde (DGS) The resource provides official health statistics and epidemiological indicators managed by the Portuguese Directorate-General of Health. It is used for public health surveillance and policy evaluation through reports and interactive data tools. Open dataset Open access HDB-0665

RAE-CMBD (Registro de Actividad de Atención Especializada)

Ministerio de Sanidad The RAE-CMBD is a registry maintained by the Spanish Ministry of Health that contains clinical and administrative information on hospital discharges and specialized outpatient care in the public and private sectors in Spain. It is used for clinical research and health system management, with anonymized microdata available upon formal application to the Ministry of Health. Research database Credentialed HDB-0666

Statistics Portugal - Health Statistics

Instituto Nacional de Estatística (INE) Statistics Portugal is operated by the Instituto Nacional de Estatística and provides official statistical data on health status, hospital activity, health professionals, and pharmaceutical consumption. The data are used for national planning and international reporting and are accessible through interactive tables and annual publications. Open dataset Open access HDB-0667

CONSTANCES Cohort

Inserm CONSTANCES is a population-based cohort in France operated by Inserm that collects data on health status, lifestyle, and socio-professional characteristics of participants through medical examinations and administrative data linkage. The cohort is designed to provide data for public health research and epidemiological studies. Research database By application HDB-0668

IMA-AIM Databases

Intermutualistisch Agentschap (IMA-AIM) The IMA-AIM databases aggregate administrative health data from the Belgian health insurance funds, covering the insured population, and include longitudinal information on reimbursed healthcare services, pharmaceutical consumption, and socio-demographic characteristics. The resource is operated by the Intermutualistisch Agentschap (IMA-AIM) and is used for analysis of health data, with access details not specified in the provided text. Research database By application HDB-0669

CBS Health Microdata

Statistics Netherlands (CBS) Statistics Netherlands (CBS) provides linkable individual-level microdata, including health datasets covering healthcare costs, hospitalizations, causes of death, and medicine use linked to national registry data. The data are intended for statistical and scientific research and are accessed through a secure remote environment. Research database Credentialed HDB-0670

Netherlands Cancer Registry (NKR)

Netherlands Comprehensive Cancer Organisation (IKNL) The Netherlands Cancer Registry is a national database operated by the Netherlands Comprehensive Cancer Organisation that contains clinical data on newly diagnosed cancer patients in the Netherlands. It is used to monitor cancer incidence, survival, and quality of care, and is accessible for scientific research through a formal application process. Research database By application HDB-0671

PALGA (National Pathology Archive)

Stichting PALGA PALGA is the national network and registry of histopathology and cytopathology in the Netherlands, operated by Stichting PALGA, and contains excerpts of pathology reports. It supports patient care by providing historical diagnostic data to pathologists and facilitates scientific research through its research database. Research database By application HDB-0672

Nivel Zorgregistraties Eerste Lijn

Nivel Nivel Primary Care Database collects routine electronic health record data from general practitioners and other primary care providers in the Netherlands, operated by Nivel. The data are used to monitor health trends, disease prevalence, and healthcare utilization in a sample of the population, with access subject to the operator's arrangements. Research database By application HDB-0673

HISIA (Belgian Health Interview Survey Interactive Analysis)

Sciensano HISIA is an interactive platform operated by the Belgian national public health institute that presents results from the Belgian Health Interview Survey, covering indicators on physical health, mental health, and lifestyle factors across demographic groups. Users can analyze these survey indicators through the platform to examine health outcomes across population groups. Open dataset Open access HDB-0674

RIZIV/INAMI Statistics Portal

RIZIV/INAMI The RIZIV/INAMI Statistics Portal provides statistical data on the Belgian compulsory health insurance system, including healthcare expenditures, provider activity, and medicine consumption, and is operated by RIZIV/INAMI. It is used by policymakers and researchers to monitor the financial and operational performance of the national insurance scheme, with access provided through the portal. Open dataset Open access HDB-0675

Perined (Perinatal Registry Netherlands)

Stichting Perined Perined manages the national perinatal registry, which links data from midwives, GPs, gynecologists, and neonatologists regarding pregnancy and childbirth. The database is used to improve the quality of perinatal care through audits, benchmarking, and epidemiological research. Research database By application HDB-0676

National Health Data Portal (Health-RI)

Health-RI The National Health Data Portal is operated by Health-RI and provides a catalog of Dutch health datasets, biobanks, and research tools. It is used to find and request access to health data for research and innovation through a standardized catalog and request infrastructure. Research database Credentialed HDB-0695

European Cystic Fibrosis Society Patient Registry

European Cystic Fibrosis Society (ECFS) The European Cystic Fibrosis Society Patient Registry is operated by the European Cystic Fibrosis Society and collects data from consenting individuals with cystic fibrosis across Europe and neighboring countries through national registries. The information is used to measure, survey and compare aspects of cystic fibrosis and its treatment in participating countries, to deepen understanding of the condition, to improve standards of care, to provide data for epidemiological research and to facilitate public health planning, with access to reports and data available through the registry's website and a research application process. Research database By application HDB-0696

Rhekiss: Rheuma - Kinderwunsch und Schwangerschaft

Epidemiology Unit, Deutsches Rheuma-Forschungszentrum Berlin (DRFZ) Rhekiss is a nationwide German register that records the course of disease during pregnancy and the wish to have children in patients with inflammatory rheumatic diseases, operated by the German Rheumatism Research Centre Berlin (DRFZ) together with the Rheumazentrum Rhein-Ruhr. Physicians and patients participate by enrolling through the study centre and completing questionnaires, with a web app available for patients to fill out forms on mobile devices. Research database By application HDB-0698

Cystic Fibrosis Registry of Ireland

Cystic Fibrosis Registry Ireland The Cystic Fibrosis Registry of Ireland is a patient registry for people with cystic fibrosis in Ireland, operated by the Cystic Fibrosis Registry of Ireland company. It collects participant information and publishes annual reports and publications, and researchers may apply for data through a stated application procedure and publication policy. Research database By application HDB-0699

ERN eUROGEN registry

Radboud university medical center (Radboudumc) The ERN eUROGEN patient registry collects data from patients with rare uro-recto-genital diseases and complex conditions, and is operated by Radboud university medical center (Radboudumc) within the European Reference Network ERN eUROGEN. It is used to follow outcomes over the long term, compare care across centres, and support research, with healthcare providers gaining access after ethical and legal approval and signing a data sharing agreement, while researchers, clinicians, patient organisations, policymakers, and companies may apply to use registry data under a data access and sharing policy. Research database By application HDB-0700

RABBIT-SpA: Disease register for axial spondyloarthritis and psoriatic arthritis

German Rheumatism Research Centre Berlin (Deutsches Rheuma-Forschungszentrum Ber RABBIT-SpA is a disease register operated by the German Rheumatism Research Centre Berlin for the long-term observation of patients with axial spondyloarthritis or psoriatic arthritis. It is used to study the effectiveness and safety of therapies over time, with patients included only after informed consent and data stored pseudonymized. Research database By application HDB-0701

Comparative, Prospective Registry of Newly Initiated Therapies for Pulmonary Hypertension

GWT-TUD GmbH - Gesellschaft für Wissens- und Technologietransfer COMPERA is a pulmonary hypertension registry that documents patients with all forms of pulmonary hypertension in which drug therapy is indicated, and it was founded in Germany as the official German registry with participation from centers in other European countries. It is operated by GWT-TUD GmbH and serves to provide real-world evidence that complements randomized controlled trials and to support quality assurance, with data entered by physicians at participating expert centers and patients unable to register themselves. Research database By application HDB-0702

INvestigating SIGnificant Health TrendS in progressive fibrosing Interstitial Lung Disease

GWT-TUD GmbH - Gesellschaft für Wissens- und Technologietransfer INSIGHTS-ILD is an observational registry that documents patients with progressive fibrosing interstitial lung disease and idiopathic pulmonary fibrosis, operated by GWT-TUD GmbH with scientific oversight by a Scientific Advisory Board and funding from Boehringer Ingelheim. The registry collects routine clinical practice data on treatment, effectiveness, safety, and quality of life, and participation occurs through participating pneumological and rheumatological centers rather than by patient self-registration. Research database By application HDB-0703

Lifelines Data and Biobank

University of Groningen Lifelines is a multi-generational prospective cohort study and biobank operated by the University of Groningen that collects, manages and shares data and biosamples from participants in the northern Netherlands, alongside linkage to external sources and additional study options. Researchers apply through a staged process covering application submission, review, contracts and project requirements in order to access the data for studies of disease etiology and risk factors. Research database By application HDB-0704

The UK-Irish Atopic Eczema Systemic Therapy Register

King's College London A-STAR is the UK-Irish Atopic Eczema Systemic Therapy Register, an observational study operated as a project of the British Association of Dermatologists and hosted by the Unit for Paediatric and Population-Based Dermatology Research at King's College London. It follows the medical care of participating patients through their local dermatologists to assess the safety and efficacy of systemic immuno-modulators for atopic eczema and the cost of treating the condition, and patients can join only through a participating centre and their dermatologist. Research database By application HDB-0706

Clinical Investigation and research for the Rendu Osler Cohort

Hospices Civils de Lyon (HCL) The CIROCO database, maintained by the French National Reference Centre for Rendu-Osler disease at the Hospices Civils de Lyon, contains anonymized clinical data on patients with hereditary hemorrhagic telangiectasia. It is used to study and analyze this patient population in order to improve patient and family care, and access is restricted to the referring physician and their team through a secure internet-based tool. Research database By application HDB-0707

Cooperative European Paediatric Renal Transplant Initiative

Heidelberg University Hospital The CERTAIN registry is a European registry and academic research network for paediatric renal transplantation founded by the Society for Paediatric Nephrology in Austria, Germany and Switzerland and associated with Heidelberg University Hospital. It collects data on the short- and long-term outcomes of paediatric renal allograft recipients for clinical research, quality assurance and patient care, and participating centres access the web application through registered user accounts or a new-user application submitted to the registry headquarters. Research database By application HDB-0709

Rare Anaemia Disorders European Epidemiological Platform

Vall d’Hebron University Hospital - Vall d’Hebron Research Institute (HUVH/VHIR) RADeep is a European epidemiological platform for rare anaemia disorders coordinated by researchers at Vall d'Hebron University Hospital and Vall d'Hebron Research Institute, developed within the ERN-EuroBloodNet network and serving as an umbrella for new and existing European patient registries. It maps diagnosis methods, demography, survival, clinical features and treatments of rare anaemia patients to support research and treatment development, with data access governed by a data access committee and a defined request process. Research database By application HDB-0710

Cooperative European Paediatric Transplant Initiative Liver

Heidelberg University Hospital The CERTAIN-LI registry is a European academic research network and registry for paediatric liver transplantation, founded by the Society for Paediatric Gastroenterology and Nutrition in Austria, Germany and Switzerland and based at Heidelberg University Hospital. It collects information on the short- and long-term outcomes of paediatric liver allograft recipients for clinical research, quality assurance and patient care, and participating centres access it through a web application via registered user accounts requested from the registry headquarters. Research database By application HDB-0711

Registro Italiano Sclerosi Multipla e Patologie Correlate (Italian Multiple Sclerosis and Related Disorders Re

The Italian Multiple Sclerosis and Related Disorders Register (RISM) – Research The Italian Multiple Sclerosis and Related Disorders Register is a disease registry that systematically collects demographic, clinical and health data on multiple sclerosis and related disorders, promoted by the Italian Multiple Sclerosis Foundation (FISM ETS) and the Aldo Moro University of Bari through a joint research unit that manages and develops the database. Participating clinical centres record a minimum data set for each consenting subject through an electronic data collection application, with data anonymised and encrypted when transferred to the central server, and the data are used to study the natural history of the disease, produce epidemiological and care-related analyses, identify prognostic factors and study rare conditions. Research database By application HDB-0712

ReMuS Registry / ReMuS, The Czech Republic Multiple Sclerosis Patient Registry / ReMuS, Registr pacientů s roz

ReMuS, nadacni fond (ReMuS) The ReMuS registry is a Czech nationwide multiple sclerosis patient registry operated by the ReMuS endowment fund, collecting data on multiple sclerosis and other neuroimmunological diseases from specialist centres across the country. Data are entered by trained staff with patient informed consent and transmitted from the centres to the registry, where they are used for research and analysis aimed at improving patient care. Research database By application HDB-0714

European Registries for Rare Endocrine and Bone Conditions

Leiden University Medical Centre (LUMC) EuRREB is a set of patient-centered registries for rare endocrine, bone and mineral conditions, operated by Leiden University Medical Centre and involving participating centres across Europe. It collects patient data through registries, condition-specific modules and studies to support collaborative research and care, with access to registry data governed by a data access committee and ethics approval. Research database By application HDB-0716

Nederlandse Cystic Fibrosis Registratie (Dutch Cystic Fibrosis Registry)

Nederlandse Cystic Fibrosis Stichting (NCFS) The Dutch Cystic Fibrosis Registry is maintained by the Dutch Cystic Fibrosis Foundation (NCFS) and contains pseudonymized medical data on people with cystic fibrosis collected annually from CF centers and published in a public report. The data are used to monitor and improve the quality of CF care, compare centers, and support analyses and research, with data requests submitted to the registry's steering committee via a form obtained by email. Research database By application HDB-0719

Big Data in Healthcare from Aragon

Instituto Aragonés de Ciencias de la Salud (IACS) BIGAN is a technological platform of the Government of Aragon that integrates data routinely collected within the public health system, managed by the Instituto Aragonés de Ciencias de la Salud and financed by the Department of Health and the Aragonese Health Service. It is used by health professionals, managers, trainers and researchers to analyze anonymized health data, with research access requiring prior approval of the research protocol by the Research Ethics Committee of Aragon. Research database By application HDB-0720

Health Data Research Platform of the Balearic Islands (PRISIB)

Balearic Islands Public Health System (IBSalut) PRISIB is the Health Information Research Platform of the Research Institute of the Balearic Islands Health Service (IdISBa), created in collaboration with the Balearic Islands Health Service (IBSalut) to provide a single access point for data from electronic health records and other complementary sources, including primary care, electronic prescription, laboratory, and hospital discharge data. The platform is used to generate knowledge, support research, and facilitate innovation and evaluation in healthcare, with data use for research projects subject to approval by the relevant Research and Ethics Committees. Research database By application HDB-0722

French National Registry of Rare Diseases (Banque Nationale de Données Maladies Rares)

Assistance Publique - Hôpitaux de Paris (AP-HP) The Banque Nationale de Données Maladies Rares is a French national registry of rare disease patient data operated by Assistance Publique - Hôpitaux de Paris on behalf of the Ministry of Health, collecting clinical data through the BaMaRa application and hospital information systems. The data are used for public health surveillance and research, with participating hospitals recording data via a connected or standalone mode and researchers requesting access to non-directly-nominative data through a defined procedure. Research database By application HDB-0723

European Rare Kidney Disease Registry

European Rare Kidney Disease Reference Network (ERKNet) The European Rare Kidney Disease Registry is a patient registry operated by the European Rare Kidney Disease Reference Network (ERKNet) that collects data on rare kidney diseases, including enrolment by disease and centre, subregistries, and registry reports. It is used for registry research projects, publications, and data quality management, with access governed by a data access policy and applications handled through the network's membership and governance structures. Research database By application HDB-0725

BELpREG: the Belgian pregnancy registry

KU Leuven BELpREG is a Belgian pregnancy registry operated by KU Leuven that collects information on medication use during pregnancy and on the health of mother and child. Pregnant women participate by completing online questionnaires, and the registry uses their reported experiences to study the use and safety of medicines during pregnancy. Research database By application HDB-0727

Pedianet

Società Servizi Telematici (SoSeTe) / Pedianet network of family paediatricians Pedianet is an Italian network of family paediatricians that has systematically collected data from daily practice since 1998, including diagnoses, prescriptions, referrals and growth measurements for children registered with participating practices. The anonymised database is used for paediatric pharmacoepidemiology and health-services research, with access through a study proposal to the network. Research database By application

Other regions

Global · 93 US · 108 Canada · 22 Latin America · 27 UK · 41 Nordic · 43 Africa · 48 Middle East · 26 Asia · 72 Oceania · 36

Health databases & datasets: Europe

ArrayExpress (BioStudies)

Eurostat Health Database

CBS StatLine Health

Vektis Open Data

Turkish Statistical Institute (TUIK) Health Statistics Portal

SNDS (Système National des Données de Santé)

Health Data Hub (Plateforme des données de santé)

Forschungsdatenzentrum Gesundheit (FDZ Gesundheit)

German Centre for Cancer Registry Data (Zentrum für Krebsregisterdaten, ZfKD)

PHARMO Database Network

Nivel Primary Care Database (Nivel-PCD)

Healthdata.be / Health Data Agency (HDA)

Hospital In-Patient Enquiry (HIPE)

EudraCT

EU Clinical Trials Register

EHDEN

DARWIN EU

SHARE (Survey of Health, Ageing and Retirement in Europe)

Lifelines (Dutch Biobank and Cohort Study)

German National Cohort Study (NAKO)

CAMELYON17

Russia Longitudinal Monitoring Survey—Higher School of Economics (RLMS-HSE)

Federal Diabetes Register (Diaregistry)

WHO European Health Information Gateway

Russian Federation Country Health Profile — WHO Data

Russian Research Institute of Health (Mednet) — Health Statistics Department

National Health Fund (NFZ)

Statistics Poland (GUS) — Health Statistics

Institute of Health Information and Statistics (ÚZIS ČR) — National Health Information System

National Health Insurance Fund (NEAK)

National Institute of Public Health (NIJZ)

Croatian Institute of Public Health (HZJZ)

National Health Information Center (NCZI)

National Health Information System (NHIS)

Institute of Public Health of Serbia 'Dr Milan Jovanović Batut'

Ukraine National eHealth System

Estonian e-Health Foundation — National Health Information System

National Health Service (VMNVD) — e-Health System

Turkish Statistical Institute (TÜİK)

Turkey Demographic and Health Survey (TDHS)

Turkey Ministry of Health Health Statistics Yearbook

WHO Health for All Database (HFA-DB)

ECDC Surveillance Atlas of Infectious Diseases

European Cancer Information System (ECIS)

Euro-Peristat: European Perinatal Health Report

ESPAD: European School Survey Project on Alcohol and Other Drugs

European Social Survey (ESS) with Health Modules

CTIS (Clinical Trials Information System)

DRKS (German Clinical Trials Register)

European Genome-phenome Archive (EGA)

Cegedim Health Data — THIN

Insight Health

TUYZE (Türkiye Health Data Research and AI Applications Institute)

Estonian Biobank

ECRIN Clinical Research Data Sharing Repository

EMA Clinical Data Publication Portal

Batut (Institute of Public Health of Serbia "Dr Milan Jovanović Batut")

Public Health Center of Ukraine

EHIF (Estonian Health Insurance Fund)

SPKC (Centre for Disease Prevention and Control, Latvia)

e-zdrowie (Polish Health Information Portal)

Maps of Health Needs (Mapy Potrzeb Zdrowotnych, Poland)

EU Trials Tracker

OMON (Overview of Medical Research in the Netherlands)

EUROCARE: Cancer Survival in Europe

InGef Research Database

ISTAT Health for All - Italia

Ministero della Salute Open Data Portal

AIFA OsMed - Medicines Utilization Monitoring Centre

AIRTUM - Italian Association of Cancer Registries

RIAP - Registro Italiano di ArtroProtesi (Italian Arthroplasty Registry)

Regione Lombardia Open Data Portal - Health

Emilia-Romagna ReportER - SISEPS Health Data Portal

National Registry of Congenital Malformations (RNMC)

EpiCentro - Epidemiological Information Gateway

PASSI - Adult Behavioural Risk Factor Surveillance System

CMBD / RAE-CMBD

BIFAP

SIDIAP