Directory / Research databases / HDB-0722

French National Registry of Rare Diseases (Banque Nationale de Données Maladies Rares)

Assistance Publique - Hôpitaux de Paris (AP-HP)

HDB-0722

The Banque Nationale de Données Maladies Rares is a French national registry of rare disease patient data operated by Assistance Publique - Hôpitaux de Paris on behalf of the Ministry of Health, collecting clinical data through the BaMaRa application and hospital information systems. The data are used for public health surveillance and research, with participating hospitals recording data via a connected or standalone mode and researchers requesting access to non-directly-nominative data through a defined procedure.

Category

Research database

Access

By application

Region

Europe — France

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Record HDB-0722 · last verified 2026-10-28 · listed in Research databases

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