Health databases & datasets: Oceania

HDB-0142

Australian Institute of Health and Welfare (AIHW) Data Collections

Australian Institute of Health and Welfare AIHW maintains over 150 datasets covering health and welfare topics including perinatal health, disability, cancer, hospital activity, alcohol and drug use, and mortality collected from Australian healthcare services. Researchers access linked data through AIHW's data linkage services, which combine administrative health records with survey and registry data. Open dataset Credentialed HDB-0143

45 and Up Study (The Sax Institute)

Sax Institute, in collaboration with Cancer Council NSW and NSW Ministry of Health Australia's largest ongoing longitudinal study of health and ageing enrolls over 250,000 participants aged 45+ and tracks them across 15+ years of follow-up data. The study provides access to survey questionnaires, physical assessments, biospecimens (blood, genetic data), and linked data from Medicare, pharmaceutical records, hospital episodes, and cancer registries. Research database By application HDB-0292

AIHW METeOR

Australian Institute of Health and Welfare AIHW's Metadata Online Registry (METeOR) provides Australia's national metadata standards for health, aged care, housing and community services, structured according to ISO/IEC 11179 specifications. It is used by Australian health organizations to ensure national consistency in data collection and reporting standards, facilitating data integration across collections and sectors. Open dataset Open access HDB-0293

Australian Cancer Database

Australian Institute of Health and Welfare The Australian Cancer Database is a national collection of all diagnosed cancers in Australia since 1982 (excluding non-melanoma skin cancers), maintained by the AIHW from state and territory cancer registries. It supports epidemiological research, cancer surveillance, trend analysis, and public health planning through standardized incident and mortality data. Research database Credentialed HDB-0294

National Death Index

Australian Institute of Health and Welfare The National Death Index is an AIHW database containing records of all deaths registered in Australia since 1980, sourced from state/territory registrars, the National Coronial Information System, and the Australian Bureau of Statistics. It is used for epidemiological research and data linkage studies, with access restricted to approved health and medical research through formal application. Research database By application HDB-0296

ANZCTR (Australian New Zealand Clinical Trials Registry)

Australian New Zealand Clinical Trials Registry ANZCTR is the clinical trials registry serving Australia and New Zealand, listed by WHO as a primary registry in the ICTRP network. Records registered here are aggregated into the WHO ICTRP search portal, which draws its data from the primary registries. Trial registry Open access HDB-0330

Prospection Patient-Centric Intelligence Core

Prospection Pty Ltd Prospection Pty Ltd, an Australian health data company, licenses de-identified longitudinal patient claims data covering Australia and other markets including New Zealand and Japan. Pharmaceutical companies use the data for treatment-pattern, patient-journey and market analysis, with access delivered through its Patient-centric Intelligence Core platform under paid subscription. Commercial provider Paid HDB-0386

New Zealand Cancer Registry

Health New Zealand / Te Whatu Ora Population-based register of all primary malignant diseases diagnosed in Aotearoa New Zealand established under the Cancer Registry Act 1993. Researchers access published data through the cancer web tool or request customized data extracts from the Data Services team for epidemiologic research and health policy analysis. Research database Open access HDB-0387

NZ Pharmaceutical Collection

Health New Zealand / Te Whatu Ora Data warehouse containing all subsidised community pharmacy dispensings in New Zealand with claim and payment information from pharmacists since 1 July 1992. Researchers access the collection through data enquiries to Health New Zealand for linkage with other national collections including mortality, hospital events, and cancer registry data. Open dataset Credentialed HDB-0402

National Minimum Dataset (NMDS)

Health New Zealand | Te Whatu Ora National collection of public and private hospital discharge information including coded clinical data, diagnoses and procedures from all New Zealand hospitals. Used by district health boards, clinicians and researchers for statistical analysis, clinical benchmarking and health service planning. Open dataset Credentialed HDB-0403

PRIMHD (Programme for the Integration of Mental Health Data)

Health New Zealand | Te Whatu Ora Single national collection of mental health and addiction service activity and outcomes data from district health boards and non-governmental organizations. Records what mental health services are provided, by whom, and what outcomes are achieved for service users in New Zealand. Open dataset Credentialed HDB-0404

Aotearoa Immunisation Register (AIR)

Health New Zealand | Te Whatu Ora Computerized national register recording all immunizations administered to people in Aotearoa New Zealand, replacing the National Immunisation Register (NIR) in 2023. Used by health professionals to monitor immunisation coverage, prevent duplicate vaccinations and ensure timely vaccine delivery. Open dataset Credentialed HDB-0405

Integrated Data Infrastructure (IDI)

Stats NZ (Tatauranga Aotearoa) Large research database integrating microdata from government agencies, Statistics NZ surveys including the 2013 Census and New Zealand Health Survey. Provides linked longitudinal individual-level data on education, income, health, benefits, migration and justice for approved researchers meeting the 'five safes' governance framework. Research database By application HDB-0406

New Zealand Health Survey

Health New Zealand | Te Whatu Ora Continuous annual survey collecting information on health and wellbeing of New Zealand adults and children since 2011, with annual updates on population health status. Reports on health behaviors, chronic conditions, healthcare access and health equity to inform health policy and service planning. Research database Free registration HDB-0407

Growing Up in New Zealand

University of Auckland A longitudinal study of child health and development tracking children born in 2009-2010 prospectively through multiple assessment waves. Provides life-course data on family, environmental and individual factors shaping child health, development and wellbeing in contemporary New Zealand. Research database By application HDB-0409

Tonga National Health Information System (NHIS)

Ministry of Health, Tonga First integrated national health information system in the Pacific, funded by Asian Development Bank, enabling bidirectional communication between health data systems and standardized health information reporting. Collects clinical health data, vital statistics (births and deaths) and supports digitization of paper-based health records for clinical and administrative decision-making. Open dataset Credentialed HDB-0411

NSW Centre for Health Record Linkage (CHeReL)

NSW Health CHeReL, established 2006 and operated by NSW Health, provides data linkage services for New South Wales and the Australian Capital Territory, linking health, human services, education and government administrative datasets. It has supported researchers from 140 institutions, producing 615 peer-reviewed publications. Open dataset By application HDB-0412

Tasmanian Data Linkage Unit

Menzies Institute for Medical Research, University of Tasmania The Tasmanian Data Linkage Unit, part of the Menzies Institute for Medical Research, provides probabilistic data linkage services linking health and administrative datasets from multiple sectors for research and policy evaluation. It is a member of the Population Health Research Network Australia. Open dataset By application HDB-0413

National Hospital Morbidity Database

Australian Institute of Health and Welfare The National Hospital Morbidity Database, compiled by the Australian Institute of Health and Welfare, contains episode-level records of admitted patient care from all public and private hospitals in Australia since 1982. It includes demographic, administrative, diagnostic, procedural and length-of-stay data for hospital separations. Open dataset By application HDB-0414

National Perinatal Data Collection

Australian Institute of Health and Welfare The National Perinatal Data Collection, coordinated by the Australian Institute of Health and Welfare since 1991, collates notifications of all live births and stillbirths in Australia from state and territory health departments. It contains information on pregnancy outcomes, childbirth circumstances, maternal and neonatal outcomes. Open dataset By application HDB-0415

Australian Immunisation Register

Services Australia The Australian Immunisation Register (AIR), managed by Services Australia, is a national register recording all funded vaccinations and most privately purchased vaccines administered to all age groups in Australia. De-identified data is available for research and linked data projects, enabling population-level analysis of vaccination coverage and safety. Open dataset By application HDB-0416

National Notifiable Diseases Surveillance System (NNDSS)

Australian Centre for Disease Control The National Notifiable Diseases Surveillance System (NNDSS), coordinated by the Australian Centre for Disease Control, collects and publishes de-identified notification data on communicable and notifiable diseases from state and territory health authorities updated daily. Public datasets and interactive data visualisation tools are available for influenza, meningococcal disease, pneumococcal disease and salmonellosis. Open dataset Open access HDB-0417

Australian Bureau of Statistics National Health Survey

Australian Bureau of Statistics The Australian Bureau of Statistics National Health Survey collects data on a nationally representative sample covering health conditions, healthcare utilisation, medications, risk factors and lifestyle factors, released in three-yearly or four-yearly cycles since 1989. Microdata are available through TableBuilder for approved researchers. Open dataset Credentialed HDB-0521

Australia and New Zealand Dialysis and Transplant Registry

ANZDATA Registry ANZDATA collects data on the incidence, prevalence and outcomes of kidney failure, dialysis and kidney transplantation from all renal units in Australia and New Zealand. Summary results are published in open annual reports, while patient-level data are released to researchers under a data access application process. Research database By application HDB-0522

Australian Stroke Clinical Registry (AuSCR)

The Florey Institute of Neuroscience and Mental Health AuSCR is a national clinical quality registry that collects data on acute stroke care processes and outcomes from participating Australian hospitals, coordinated by the Florey Institute. Hospitals contribute data for quality monitoring, and researchers request access to the data through the registry's governance process. Research database By application HDB-0523

Australian Orthopaedic Association National Joint Replacement Registry

Australian Orthopaedic Association The AOANJRR collects data on hip, knee, shoulder and other joint replacement procedures from hospitals across Australia to monitor implant performance and patient outcomes. Aggregate findings are published in annual reports, and data are released for research through a formal data request process. Research database By application HDB-0524

New Zealand Mortality Collection

Health New Zealand (Te Whatu Ora) The Mortality Collection classifies the underlying cause of death for all deaths registered in New Zealand and for registered fetal deaths, using death registration data supplied by Births, Deaths and Marriages. Summary statistics are published openly, and identifiable or unit record data are supplied under Health New Zealand's data access rules. Research database By application HDB-0525

Virtual Diabetes Register

Health New Zealand (Te Whatu Ora) The Virtual Diabetes Register uses national health data to estimate the number of people in New Zealand with diagnosed diabetes, maintained by Health New Zealand. Aggregate results are published through an open web tool, while identifiable data are used within the health system to support service planning. Open dataset Open access HDB-0531

Centre for Victorian Data Linkage

Victorian Agency for Health Information (VAHI), Department of Health Victoria The Centre for Victorian Data Linkage is Victoria's specialist data linkage unit, maintaining the Victorian Linkage Map and the Integrated Data Resource, a collection of almost 40 datasets that are linked monthly. Researchers and Victorian government employees apply for linked de-identified data for approved projects, which is analysed in a secure environment and provided on a cost-recovery basis. Research database By application HDB-0536

Pacific Data Hub (PDH) / PDH.stat

Pacific Community (SPC) The Pacific Data Hub is a regional data platform operated by the Pacific Community (SPC) that publishes datasets from Pacific Island countries and territories, including health, population, demographic and environmental indicators. Datasets are openly browsable and downloadable, and are distributed in standardised SDMX format to support regional policy and research. Open dataset Open access HDB-0538

Growing Up in Australia: Longitudinal Study of Australian Children

Australian Institute of Family Studies / Department of Social Services Growing Up in Australia (LSAC) is a longitudinal cohort study following Australian children and their families from early childhood onward, established 2004 and conducted by the Australian Institute of Family Studies in partnership with the Department of Social Services. It measures child development, family functioning, wellbeing and socioeconomic outcomes to inform child and family policy. Research database By application HDB-0540

Data Linkage Queensland

Queensland Health, Data Services Branch Data linkage service within Queensland Health that routinely links multiple health and human services datasets for approved research, policy development and health service planning. Researchers submit data linkage requests to enhance existing datasets with patient health records and service usage. Research database By application HDB-0545

National Cancer Screening Register

Telstra Health, on behalf of the Australian Government Department of Health and Aged Care The National Cancer Screening Register maintains a single electronic record for each person in Australia participating in the national bowel, cervical and lung cancer screening programs, and is operated by Telstra Health under contract to the Department of Health and Aged Care. Participants and healthcare providers access screening histories and program functions through an authenticated online portal and integrated clinical software. Geo-restricted Research database Free registration HDB-0624

National Statistical Office of Papua New Guinea — Health Statistics

National Statistical Office of Papua New Guinea The National Statistical Office of Papua New Guinea publishes the country's health indicators, covering fertility, family planning, childhood and maternal mortality, HIV awareness and non-communicable disease, drawn largely from its Demographic and Health Surveys. Reports and indicator tables are downloadable without registration. Open dataset Open access