Research databases

HDB-0082

Kenya Medical Research Institute (KEMRI)

Kenya Medical Research Institute KEMRI is a Kenyan health research institute established in 1979, conducting research on infectious diseases, parasitic diseases, epidemiology, and non-communicable diseases with laboratories and extensive surveillance networks. The institute operates the Kilifi Health and Demographic Surveillance System (KHDSS), a Clinical Information Network spanning 25 hospitals, and maintains a biobank of over one million samples. Research database Credentialed HDB-0090

Japan MID-NET (Medical Information Database Network)

Pharmaceuticals and Medical Devices Agency (PMDA) A distributed medical information database established in 2018 aggregating electronic health records, insurance claims data, and diagnosis procedure combination information from healthcare institutions. The database supports real-world drug safety assessments and pharmacoepidemiological research with rigorous quality management standards. Research database Credentialed HDB-0092

National Health Information Database / National Health Insurance Service Data

National Health Insurance Service (NHIS) A research data platform providing access to universal health insurance and health screening data covering over 50 million members of South Korea's national insurance system. The database includes eligibility data, health screening results, healthcare utilization records, prescriptions, and mortality information for the entire insured population. Research database Credentialed HDB-0093

Health Insurance Review and Assessment Service Data (HIRA)

Health Insurance Review and Assessment Service A claims repository containing healthcare reimbursement data from 98% of South Korea's population covering 56+ million patients (2015-2024 in standardized OMOP-CDM format). The database includes patient demographics, diagnoses, prescriptions, procedures, and surgical information supporting health services research. Research database Open access HDB-0095

Clinical Data Analysis and Reporting System (CDARS)

Hospital Authority A clinical data repository managed by Hong Kong's Hospital Authority covering over 11 million individuals (90%+ of population) with electronic health records from 43 hospitals and 122 outpatient clinics. The database contains diagnosis codes, medication records, procedures, laboratory results, and admission/discharge details supporting territory-wide epidemiological research. Research database Credentialed HDB-0097

ICMR National Health Research Data Repository

Indian Council of Medical Research (ICMR) Centralized repository of anonymized high-quality health research datasets maintained by ICMR to support health research and innovation in India. Researchers must register and gain credentialed access to query datasets covering areas including gastrointestinal disorders, cerebral thrombosis, pesticide exposure, and infectious diseases. Research database Credentialed HDB-0098

ICMR-NINE National Cancer Registry Programme

ICMR - National Institute of NCD Epidemiology (formerly NCDIR) National cancer registry program established in 1982, operating through 38 population-based cancer registries (PBCRs) and 269 hospital-based registries (HBCRs) covering approximately 11 percent of India's population. Registry data supports understanding cancer epidemiology, trends, and patterns across India; registries operate as part of broader NCD surveillance including diabetes, cardiovascular disease, and stroke. Research database By application HDB-0102

Singapore National Registry of Diseases Office (NRDO)

National Registry of Diseases Office (NRDO), Ministry of Health Singapore Government registry established under the National Registry of Diseases Act (2007) that maintains disease registries for major conditions including cancer (established 1968), myocardial infarction, renal failure, and stroke. Registries collect clinical and epidemiological data from healthcare institutions to track disease burden, trends, and outcomes. Research database Credentialed HDB-0105

Bangladesh icddr,b Matlab Health and Demographic Surveillance System

icddr,b (International Centre for Diarrhoeal Disease Research, Bangladesh) The longest-running health and demographic surveillance system in the global South, operating since 1966 in Matlab, Bangladesh, tracking births, deaths, migrations, marriages, and divorces across a rural population of approximately 220,000. Matlab HDSS is a member of the INDEPTH network and serves as a research platform for health and demographic studies in developing country contexts. Research database By application HDB-0107

Clalit Research Institute

Clalit Health Services Clalit Research Institute maintains one of the world's richest integrated healthcare data repositories spanning over 30 years of fully digitized medical records from over 5.5 million members of Clalit Health Services. The institute provides access to longitudinal clinical data including diagnoses, hospitalizations, medications, laboratory results, and medical procedures for research applications. Research database Credentialed HDB-0108

KSM Research and Innovation Center

Maccabi Healthcare Services KSM Research and Innovation Center maintains research access to Maccabi Healthcare Services' digital medical records covering 2.6 million members with 30 years of longitudinal data, plus Israel's largest biobank containing over 1 million samples. The center supports research through multiple divisions including innovation and big data analytics, epidemiology, and clinical research infrastructure. Research database Credentialed HDB-0109

Golestan Cohort Study

Digestive Diseases Research Institute, Tehran University of Medical Sciences; National Cancer Institute (NCI) The Golestan Cohort Study is a population-based prospective cohort of approximately 50,000 adults aged 40-75 years in Golestan Province, Iran, established to investigate environmental and genetic risk factors for esophageal squamous cell carcinoma. Participants provided biological specimens (blood, hair, nails, urine) and detailed lifestyle and dietary questionnaire data, with ongoing annual follow-up monitoring. Research database By application HDB-0112

Danish National Patient Registry (Landspatientregisteret)

Danish Health Data Authority (Sundhedsdatastyrelsen) The Danish National Patient Registry contains data on all hospital admissions, diagnoses coded in ICD-10, procedures coded in NOMESCO, and treatments in Denmark since 1977, covering both psychiatric and non-psychiatric inpatient care as well as emergency and outpatient specialty visits since 1995. Access for research is granted through application to the Danish Health Data Authority, which manages the registry as part of a broader health data system covering operations, diagnoses, births, causes of death, and medicines. Research database By application HDB-0113

Danish Civil Registration System (Det Centrale Personregister)

Ministry for Economic Affairs and the Interior (Denmark) The Danish CPR is a national register established in 1968 that maintains civil registration numbers, names, addresses, birth records, citizenship, church affiliation, parentage, and marital status for all Danish residents and Greenlandic citizens. Data is accessible to government agencies, businesses, organizations, and research institutions through data purchase arrangements, and individuals can request access to their own records. Research database Credentialed HDB-0114

Statistics Denmark

Statistics Denmark (Danmarks Statistik) Statistics Denmark is the central authority on Danish statistics that provides researchers and analysts access to a wide range of pseudonymised microdata about Danish society through its digital platform (DDP App). Authorised institutions can submit project proposals for approval to access microdata for research and analysis purposes. Research database Credentialed HDB-0115

Swedish National Patient Register (Nationella Patientregistret)

Socialstyrelsen (National Board of Health and Welfare, Sweden) The Swedish National Patient Register contains data on all inpatient hospital episodes since 1964 and outpatient specialist care visits, day surgery, and psychiatric care since 2001, including diagnoses, procedures, and administrative information. Access for research requires approval from the Swedish Ethical Review Authority following a formal application process. Research database By application HDB-0116

Swedish Prescribed Drug Register (Läkemedelsregistret)

Socialstyrelsen (National Board of Health and Welfare, Sweden) The Swedish Prescribed Drug Register contains records of all prescribed drugs dispensed in Swedish pharmacies since July 2005, with over 100 million entries annually, including patient age, sex, unique identifier, prescriber information, and dispensation details. The register is updated monthly and used by researchers, public agencies, journalists, and pharmaceutical industry representatives to study prescription patterns and drug safety. Research database By application HDB-0117

Norwegian Patient Registry (Norsk Pasientregister)

Norwegian Institute of Public Health (NIPH) The Norwegian Patient Registry contains information on all individuals who have received or are waiting to receive treatment in the specialist health service since 2008, including administrative, medical, and social information about healthcare episodes. Data access for research and other purposes requires submission of an application form to the Norwegian Institute of Public Health. Research database By application HDB-0118

Norwegian Prescribed Drug Registry (Legemiddelregisteret)

Norwegian Institute of Public Health (FHI) The Norwegian Prescribed Drug Registry is the successor to the Norwegian Prescription Database (NorPD) and contains records of all prescription drugs dispensed in Norwegian pharmacies since 2004, anonymised and pseudonymised for research use. Applications for research data access must be submitted to the Norwegian Institute of Public Health. Research database By application HDB-0119

FinnGen

FinnGen (public-private partnership) FinnGen is a large research project that has collected genome and longitudinal health data from over 500,000 Finnish biobank participants (approximately 10% of Finland's population), comprising more than 21.3 million genetic variants and over 2,750 health endpoints. Genome-wide association study (GWAS) results are publicly available for browsing and download, while complete dataset access is available to researchers at Finnish universities and university hospitals. Research database Free registration HDB-0120

Findata (Finnish Social and Health Data Permit Authority)

Findata (Finland) Findata is the Finnish authority that grants permits for the secondary use of health and social care data from multiple public and private data controllers, providing researchers access to pseudonymised registry data through a formal permit application process that typically requires 2-4 months for decision. The authority also pre-processes approved datasets and offers analytical tools for approved research uses. Research database By application HDB-0121

NORDCAN (Nordic Cancer Statistics Database)

Association of Nordic Cancer Registries (ANCR) and International Agency for Research on Cancer (IARC) NORDCAN is a web-based tool providing cancer statistics from Nordic countries (Denmark, Finland, Iceland, Norway, Sweden, Faroe Islands, and Greenland) including incidence, mortality, survival, and prevalence data spanning up to 70 years, with the earliest records from Denmark's National Cancer Registry established in 1943. Data is updated annually and presented as anonymous, privacy-protected statistics that can be compared across countries, regions, cancer types, and demographic groups. Research database Open access HDB-0122

SNDS (Système National des Données de Santé)

Cnam (National Health Insurance Fund) The SNDS integrates health insurance reimbursement data (Sniiram), hospital activity records (PMSI), mortality data from Inserm, and disability support data, covering over 65 million individuals. Access is provided through the Health Data Hub to public organizations with permanent public service missions and to entities authorized by CNIL (France's data protection authority) for public interest research. Research database Credentialed HDB-0123

Health Data Hub (Plateforme des données de santé)

GIP Santé (Public Interest Grouping), joint supervision of Ministry of Health, INRIA, INSERM, CNAM The Health Data Hub is France's national platform providing secure, unified access to pseudonymized health data from SNDS and other national health registries, serving researchers, innovators, and public health authorities. Data access requires project submission, CNIL authorization, and demonstration of public interest; over 230 projects have been approved through the platform. Research database By application HDB-0124

Forschungsdatenzentrum Gesundheit (FDZ Gesundheit)

BfArM (Federal Institute for Drugs and Medical Devices) The FDZ Gesundheit provides pseudonymized billing data from all legally insured Germans through virtual analysis workspaces, with plans to add electronic patient record (ePA) data as of late 2026. Researchers submit applications detailing their research purpose, and approved researchers access customized datasets within secure analysis environments without direct data transfer. Research database By application HDB-0125

German Centre for Cancer Registry Data (Zentrum für Krebsregisterdaten, ZfKD)

Robert Koch Institute (RKI) The ZfKD consolidates clinical and epidemiological cancer registry data from all 16 German federal states, providing incidence, prevalence, and survival statistics across 30+ cancer types with 25 years of historical data. Access is provided through an interactive database query interface and regular epidemiological publications; data through 2023 is available. Research database Open access HDB-0126

PHARMO Database Network

PHARMO Institute (now part of Lumanity) The PHARMO Database Network comprises anonymized linked healthcare records from 14 million patients across 1,400 primary and secondary care providers in the Netherlands, representing 250 million person-years of data including GP records, hospital admissions, pharmacy records, and specialized registries. Researchers access PHARMO through coordinated studies via institutional partnerships; the database has contributed to over 1,000 published studies covering drug safety, effectiveness, and utilization. Research database Credentialed HDB-0127

Nivel Primary Care Database (Nivel-PCD)

Nivel (Netherlands Institute for Health Services Research) The Nivel Primary Care Database combines routine electronic health record data from representative samples of Dutch primary care providers (GPs, physiotherapists, mental health professionals, dietitians) linked with pharmacy and secondary care data. Researchers access de-identified data through a formal application and approval process governed by steering committees with healthcare provider representatives. Research database Credentialed HDB-0128

Healthdata.be / Health Data Agency (HDA)

Health Data Agency (formerly Sciensano) Healthdata.be is a Belgian platform that facilitates data exchange between healthcare professionals and researchers while protecting privacy and medical confidentiality, providing inventory of national health registries and secure data collection infrastructure. As of April 1, 2026, the platform is managed by the Health Data Agency; access procedures and registry management are coordinated through the updated platform at hda.belgium.be. Research database By application HDB-0129

Clinical Practice Research Datalink (CPRD)

Medicines and Healthcare products Regulatory Agency (MHRA) CPRD is a database of de-identified patient records from a network of UK general practices, covering approximately 60 million historical patients with 18 million currently registered, operated by the MHRA with support from the National Institute for Health and Care Research. Researchers access CPRD data for observational studies, clinical research, and surveillance through an application and review process conducted by the CPRD team. Research database By application HDB-0130

Hospital Episode Statistics (HES)

NHS England Digital HES is a national administrative database containing over 1 billion records of all NHS hospital admissions, outpatient appointments, and emergency department attendances in England, maintained by NHS England Digital. Researchers and organizations access HES data through data access request services for health services research, epidemiology, and policy evaluation. Research database By application HDB-0131

OpenSAFELY

Bennett Institute for Applied Data Science, University of Oxford, in partnership with NHS England, TPP, and Optum OpenSAFELY is a trusted research environment and open-source analytics platform that enables researchers to conduct statistical analyses on pseudonymized primary care records from across the UK without direct access to individual patient data. Approved researchers submit analysis code that executes on the platform, with only aggregated results returned to researchers, ensuring privacy protection while supporting 200+ active projects. Research database Credentialed HDB-0132

SAIL Databank (Secure Anonymised Information Linkage)

Swansea University Medical School, funded by Health and Care Research Wales SAIL Databank is a trusted research environment containing anonymised health and social care records for approximately 5.5 million people in Wales, integrating data from NHS services, social care, educational records, and other administrative sources, with 25+ years of historical coverage and ISO 27001 certification. Researchers apply through a governance review process to access linked datasets for epidemiological, health services, and policy research. Research database Credentialed HDB-0133

Scotland National Safe Haven (eDRIS)

Public Health Scotland, Electronic Data Research and Innovation Service (eDRIS), hosted by EPCC and University of Edinburgh The Scotland National Safe Haven is a trusted research environment providing secure access to sensitive NHS patient records for approved research projects, governed by Scotland's Public Benefit and Privacy Panel. Accredited researchers submit applications for access to linked NHS data for epidemiology, health services research, and public health surveillance. Research database Credentialed HDB-0134

IQVIA Medical Research Data (IMRD)

IQVIA (previously known as The Health Improvement Network - THIN) IQVIA Medical Research Data is a longitudinal database of de-identified electronic health records from more than 6 million patients in England, derived from participating general practices using EMIS Health, Cegedim, and other clinical systems, and approved by the NHS Health Research Authority for medical research. Researchers access IMRD through application and data-sharing agreements for observational studies, pharmacovigilance, and comparative effectiveness research. Research database By application HDB-0135

Genomics England: 100,000 Genomes Project

Genomics England, funded by the UK Department of Health and Social Care The 100,000 Genomes Project is a genomic database containing whole genome sequences from approximately 85,000 NHS patients affected by rare diseases or cancer, established between 2013 and 2018, with data linked to NHS clinical records and participant consent status. Qualified researchers can access the project's genomic and phenotypic data through application for research on disease genetics, therapeutic development, and diagnostics. Research database By application HDB-0136

Our Future Health

Our Future Health, a public-private partnership involving NHS England, UK Research and Innovation, Wellcome Trust, and industry partners Our Future Health is a health cohort and biobank recruiting up to 5 million UK participants with linked health records, physical measurements, biosamples, and genetic data, designed to enable large-scale research on disease prevention and treatment. Qualified researchers access de-identified participant data through a secure trusted research environment for studies on disease patterns, risk factors, and health outcomes across diverse populations. Research database By application HDB-0137

UK Data Service

UK Data Service (part of Jisc), funded by the Economic and Social Research Council and supported by partner institutions The UK Data Service maintains the UK's largest collection of research data, including health surveys (Health Survey for England, Adult Psychiatric Morbidity Survey, National Child Measurement Programme) and social research datasets covering health outcomes, healthcare access, and population health. Researchers access health datasets for secondary analysis and educational purposes through online discovery tools with free or subscription-based registration. Research database Free registration HDB-0138

Hospital In-Patient Enquiry (HIPE)

Healthcare Pricing Office (HPO), Irish Department of Health HIPE is a national computerised health information system recording demographic, administrative, and clinical data on all inpatient and daycase discharges from publicly funded acute hospitals in Ireland, covering approximately 1.7 million discharges annually from 58 public acute hospitals. Researchers access HIPE data through the HPO for health services research, epidemiology, clinical audit, and policy planning using the HIPE Statistics Reporter or data requests. Research database By application HDB-0143

45 and Up Study (The Sax Institute)

Sax Institute, in collaboration with Cancer Council NSW and NSW Ministry of Health Australia's largest ongoing longitudinal study of health and ageing enrolls over 250,000 participants aged 45+ and tracks them across 15+ years of follow-up data. The study provides access to survey questionnaires, physical assessments, biospecimens (blood, genetic data), and linked data from Medicare, pharmaceutical records, hospital episodes, and cancer registries. Research database By application HDB-0144

ICES (formerly Institute for Clinical Evaluative Sciences) - Ontario

ICES ICES is an independent health data analytics institute housing Ontario health system data collected since 1992 from healthcare interactions including hospital, primary care, and social service records. Researchers access linked administrative health data for studies in cancer, cardiovascular disease, mental health, and health equity through formal research agreements. Research database By application HDB-0145

Canadian Institute for Health Information (CIHI)

Canadian Institute for Health Information CIHI is an independent, not-for-profit organization providing standardized health system data and indicators for Canadian provinces and territories, including hospital, pharmaceutical, and health services data. The institute publishes reports, dashboards, and data tables through its indicator library and provides secure analytical tools (Insight+) for deeper analysis of health system performance. Research database Free registration HDB-0146

Canadian Longitudinal Study on Aging (CLSA)

Canadian Longitudinal Study on Aging CLSA is a national longitudinal research platform following 51,000+ participants aged 45-85 across 20 years to examine biological, medical, psychological, social, and economic aspects of aging, disability, and disease. The study provides researchers and international collaborators access to questionnaire data, physical assessments, biomarkers, genomics, metabolomics, imaging, and linked health outcome data including COVID-19 serology. Research database By application HDB-0154

OHDSI

OHDSI Collaborative OHDSI is an international open-science collaborative that standardizes and coordinates observational health databases through the OMOP Common Data Model for large-scale analytics and real-world evidence generation. The network operates through a decentralized community of researchers and data partners who can conduct collaborative studies using harmonized health data while maintaining local data governance. Research database Free registration HDB-0155

EHDEN

EHDEN Foundation EHDEN operates a federated network of over 100 healthcare data sources across Europe standardized to the OMOP Common Data Model to generate reliable real-world evidence for medicines and health research. The foundation provides infrastructure, training, and research coordination services to enable collaborative studies while maintaining data governance and institutional autonomy. Research database By application HDB-0156

DARWIN EU

European Medicines Agency (EMA) DARWIN EU is the EMA's Data Analysis and Real World Interrogation Network, established to provide timely evidence on the safety and effectiveness of medicines using real-world healthcare data from approximately 40 data partners across the EU. The network conducts regulatory studies to support medicines oversight and authorization decisions throughout a medicine's lifecycle. Research database By application HDB-0157

FDA Sentinel Initiative

FDA (US Food and Drug Administration) The FDA Sentinel Initiative is a distributed system for evaluating the safety and performance of medical products using real-world data from insurance claims, electronic health records, and patient reports covering approximately 138.7 million members. Data remain with their sources (insurance companies, EHR systems, etc.) and are analyzed through a decentralized model that preserves privacy and data security. Research database By application HDB-0158

PCORnet

PCORI (Patient-Centered Outcomes Research Institute) PCORnet is a national research network funded by PCORI that aggregates health data from diverse clinical settings to enable patient-centered comparative effectiveness research and fast, trustworthy evidence generation. The network provides researchers and healthcare organizations with access to clinical data and research infrastructure while incorporating patient perspectives in research design. Research database By application HDB-0161

HDR UK Innovation Gateway

HDR UK (Health Data Research UK) HDR UK Gateway is a centralized platform that enables researchers to discover, access, and link UK health datasets for research, including integration with the Cohort Discovery Service for secure exploration of patient cohorts across multiple datasets. The platform streamlines the researcher journey from feasibility assessment through data access agreements with NHS trusts, academic institutions, and other data holders. Research database Free registration HDB-0175

Grand Challenge

Diagnostic Image Analysis Group (DIAG), Radboud University Medical Center A platform hosting 419+ open medical imaging challenges and datasets across diverse imaging modalities and anatomical sites. Participants can submit algorithms, access benchmark datasets, and benchmark their models against peer submissions in real time. Research database Free registration HDB-0178

National Health Insurance Research Database (NHIRD, Taiwan)

Health and Welfare Data Science Center, Ministry of Health and Welfare (Taiwan) De-identified claims data from Taiwan's single-payer National Health Insurance scheme, which covers essentially the whole population, including diagnoses, prescriptions, procedures and examinations. Access is granted through the Ministry of Health and Welfare's Health and Welfare Data Science Center, where approved researchers analyse the data on-site or in a controlled environment rather than downloading it. Research database By application HDB-0179

NDB — National Database of Health Insurance Claims (Japan)

Ministry of Health, Labour and Welfare (Japan) Japan's national repository of anonymized health insurance claims and Specific Health Checkup records, collected under the Ministry of Health, Labour and Welfare with data from April 2009 onward. Researchers apply to MHLW for provision of the anonymized data, which is used for health policy analysis and pharmacoepidemiology; MHLW also publishes aggregated NDB open data tables. Research database By application HDB-0196

Uganda Genome Resource (UGR)

MRC/UVRI and LSHTM Uganda Research Unit, Wellcome Sanger Institute The UGR is a genomic and phenotypic database established in 2011 containing genotype and whole-genome sequence data from ~7,833 Ugandan individuals representing 10 ethno-linguistic groups, with phenotypic data on communicable and non-communicable diseases, cardiometabolic traits, and infectious disease biomarkers from the Uganda General Population Cohort. Data supports genomics research for disease susceptibility discovery and polygenic risk assessment in African populations. Research database Credentialed HDB-0204

INDEPTH Data Repository (iSHARE)

International Network for the Demographic Evaluation of Populations and Their Health (INDEPTH) The INDEPTH iSHARE repository archives high-quality longitudinal datasets from 30+ Health and Demographic Surveillance System sites across sub-Saharan Africa and Asia, providing population-based health and demographic data in a standardized format. The repository enables cross-site comparative research and access to microdata that would otherwise remain dispersed across individual HDSS institutions. Research database Free registration HDB-0206

Africa Health Research Institute (AHRI)

Africa Health Research Institute An independent transdisciplinary research institute based across two campuses in KwaZulu-Natal, South Africa, operating a health and demographic surveillance system (HDSS) for longitudinal population monitoring focused on HIV, TB, emerging infections, and adolescent mental health. AHRI combines population, basic, translational, and clinical sciences with approximately 500 scientists and staff collaborating with over 60 institutions globally. Research database Credentialed HDB-0221

Egypt Demographic and Health Survey (EDHS)

Conducted by El-Zanaty and Associates on behalf of Egypt Ministry of Health, funded by USAID Egypt's nationally representative survey series providing data on fertility, family planning, maternal and child health, vaccination, infectious diseases and nutrition, conducted periodically since 1988 as part of the Demographic and Health Surveys Program. The 2014 EDHS surveyed 28,175 households and 21,762 ever-married women aged 15-49, with data available for six major geographic subdivisions including urban and rural Upper and Lower Egypt. Research database Free registration HDB-0225

ALPHA Network (Network for Analysing Longitudinal Population-based HIV/AIDS data on Africa)

London School of Hygiene and Tropical Medicine (LSHTM) ALPHA brings together ten population-based HIV surveillance sites across eastern and southern Africa (Kenya, Malawi, South Africa, Tanzania, Uganda, Zimbabwe), collecting individual-level data on HIV infection, demographics, behavior, socio-economic status, and clinical outcomes since the late 1980s. Anonymized microdata are available through DataFirst under license for research on HIV incidence, mortality, and the effects of HIV on population dynamics. Research database Credentialed HDB-0226

INSPIRE Datahub

African Population and Health Research Center (APHRC), with ALPHA Network, SAPRIN, and CODATA INSPIRE is a pan-African integrated suite of services for harmonizing longitudinal population health data from health and demographic surveillance systems (HDSS) across multiple African countries using OHDSI tools and the OMOP Common Data Model. The platform enables researchers and policymakers to access standardized, FAIR-compliant datasets on fertility, mortality, migration, and morbidity for evidence-based decision-making. Research database Free registration HDB-0232

AGARI (African Genomic Archive for Response & Insight)

Africa CDC (African Union Commission) AGARI is a continent-wide genomic data sharing platform that provides secure, real-time access to pathogen sequence data and analysis while respecting national sovereignty and data governance. It enables African scientists and public health officials to rapidly detect and respond to disease threats through collaborative genome archiving and analysis infrastructure. Research database Credentialed HDB-0233

Russia Longitudinal Monitoring Survey—Higher School of Economics (RLMS-HSE)

Higher School of Economics University; Carolina Population Center, University of North Carolina at Chapel Hill A nationally representative panel survey conducted annually since 1994 tracking health, economic welfare, employment, income, education and lifestyle for Russian households and individuals. Data are freely available for public analysis in Stata and SPSS formats with codebooks and questionnaires in English. Research database Free registration HDB-0234

Federal Diabetes Register (Diaregistry)

National Medical Research Center of Endocrinology; Russian Ministry of Health A clinical-epidemiological monitoring system tracking diabetes mellitus, hypothalamic-pituitary tumors, hypoparathyroidism, primary hyperparathyroidism, and medullary thyroid cancer across all 83 Russian regions. The registry integrates patient data from healthcare facilities nationwide to support surveillance and clinical research on endocrine conditions. Research database Credentialed HDB-0236

WHO European Health Information Gateway

World Health Organization Europe A central data repository for validated health, economic and demographic statistics across the 53 countries in the WHO European Region, including Russia, Central Asia, Caucasus and Eastern Europe. Covers ~1,450 indicators on health status, risk factors, health systems and resources with data spanning 1970 to present. Research database Open access HDB-0239

Tajikistan Country Health Profile — WHO Data

World Health Organization WHO's country-level health data for Tajikistan covering population demographics, life expectancy, mortality by cause, disease burden and health system indicators. Death registration data quality is noted as low completeness with severity issues in cause-of-death assignment. Research database Open access HDB-0240

Kyrgyzstan Country Health Profile — WHO Data

World Health Organization WHO's country-level health data for Kyrgyzstan including population, life expectancy, mortality rates, disease burden and health service coverage indicators. Complements Kyrgyzstan's electronic disease surveillance systems with international comparative statistics. Research database Open access HDB-0241

Kazakhstan Country Health Profile — WHO Data

World Health Organization WHO's country-level health dataset for Kazakhstan covering population, life expectancy, mortality, disease burden, maternal/child health, immunization coverage and health system capacity. Data support international comparisons and health policy monitoring. Research database Open access HDB-0242

Mongolia Country Health Profile — WHO Data

World Health Organization WHO's health data for Mongolia containing population statistics, life expectancy, mortality indicators and health system coverage metrics. Data reflect Mongolia's epidemiological transition with declining communicable disease burden and rising non-communicable disease prevalence. Research database Open access HDB-0243

Russian Federation Country Health Profile — WHO Data

World Health Organization WHO's health dataset for the Russian Federation including population, life expectancy, mortality by cause, disease burden, immunization coverage and health workforce density. Data support international health comparison and disease surveillance. Research database Open access HDB-0244

Uzbekistan Country Health Profile — WHO Data

World Health Organization WHO's country-level health data for Uzbekistan covering demographics, life expectancy, mortality, disease burden, maternal/child health and health system indicators. Tracks Uzbekistan's progress toward universal health coverage targets. Research database Open access HDB-0245

Russian Research Institute of Health (Mednet) — Health Statistics Department

Russian Research Institute of Health; Russian Ministry of Health Russia's health policy and research institute maintains a database of statistical observation forms from all 83 regions using the MEDSTAT software package. Provides data on health status, health system performance and epidemiological indicators across the Russian Federation. Research database Credentialed HDB-0248

Institute of Health Information and Statistics (ÚZIS ČR) — National Health Information System

Ústav zdravotnických informací a statistiky (ÚZIS ČR), Ministry of Health of the Czech Republic Established in 1960, ÚZIS maintains the Czech Republic's National Health Information System and 12 national health registries covering cancer, hospitalization, reproduction health, cardiovascular surgery, occupational diseases, and other conditions. Data is published in the Czech Health Statistics Yearbook and provided to researchers through formal requests. Research database Credentialed HDB-0250

National Institute of Public Health (NIJZ)

Nacionalni inštitut za varovanje zdravja (NIJZ), Ministry of Health of Slovenia NIJZ is Slovenia's principal public health authority maintaining health registries and databases on communicable diseases, vaccinations, occupational accidents, hospitalization and outpatient services. Data collection uses the automated e-transfer portal ePrenosi with real-time data validation and feedback to providers. Research database Credentialed HDB-0251

Croatian Institute of Public Health (HZJZ)

Hrvatski zavod za javno zdravstvo (HZJZ), Ministry of Health of Croatia HZJZ is the official carrier of health statistics in Croatia and maintains national registries on cancer, diabetes, communicable diseases and occupational diseases. The Institute publishes annual health-statistical yearbooks and thematic epidemiological reports used by policymakers and researchers. Research database Open access HDB-0252

National Health Information Center (NCZI)

Národné centrum zdravotnických informácií (NCZI), Ministry of Health of the Slovak Republic NCZI is Slovakia's state-funded organization administering the National Health Information System and national health registries covering administrative and clinical data from healthcare providers. The center standardizes health informatics, compiles health statistics and collaborates internationally with WHO, OECD and EUROSTAT. Research database Credentialed HDB-0254

Institute of Public Health of Serbia 'Dr Milan Jovanović Batut'

Institut za javno zdravlje Srbije 'Dr Milan Jovanović Batut', Ministry of Health of Serbia Serbia's expert public health institution maintains databases on health and healthcare utilization, national health registries, and conducts population health surveys. The Institute provides independent research on public health issues and technical guidance to the Serbian government on health policy and services planning. Research database Credentialed HDB-0260

Turkey Demographic and Health Survey (TDHS)

Hacettepe University Institute of Population Studies A nationally representative population and health survey conducted at five-year intervals since 1993 by Hacettepe University, providing data on fertility, maternal and child health, family planning, and early childhood development across Turkey. Microdata is available to researchers through formal data-sharing agreements. Research database Credentialed HDB-0266

Israel National Cancer Registry

Israel Center for Disease Control (ICDC), Ministry of Health Established in 1960 and under the auspices of the Israel Center for Disease Control since 2005, this registry maintains mandatory reporting of all newly diagnosed cancer cases in Israel since 1982. Registry data supports cancer surveillance, epidemiological research, and policy monitoring; access to microdata requires application through the Ministry of Health. Research database By application HDB-0269

European Cancer Information System (ECIS)

European Commission Joint Research Centre (JRC), in collaboration with European Network of Cancer Registries (ENCR) Web-based tool aggregating cancer burden data from approximately 150 population-based cancer registries across 34 European countries, covering 58 cancer sites. Provides incidence, mortality, prevalence, and survival estimates updated as new registry data become available. Research database Open access HDB-0271

Euro-Peristat: European Perinatal Health Report

Inserm (French National Institute of Health and Medical Research), Paris; funded by European Commission European perinatal surveillance network coordinating data collection on mothers' and newborns' health outcomes from 31 countries across vital statistics, medical birth registers, and hospital discharge data. Publishes periodic European Perinatal Health Reports (2008, 2013, 2018, 2022) and national-level data on stillbirth, preterm birth, neonatal mortality, and socioeconomic health disparities. Research database Open access HDB-0273

HBSC: Health Behaviour in School-aged Children Study

WHO collaborative study, coordinated by University of Bergen International Coordinating Centre WHO cross-national longitudinal study monitoring health, well-being, and behavior of adolescents aged 11, 13, and 15 years in their social context, conducted every four years across 51 countries and regions in Europe, Central Asia, and North America. The interactive data browser provides access to nine topic areas including mental health, substance use, physical activity, and social relationships. Research database Open access HDB-0274

European Social Survey (ESS) with Health Modules

European Research Infrastructure Consortium (ERIC); coordinated from multiple European research institutions High-quality open-access survey of public attitudes, beliefs, and behavior across 30+ European countries conducted biennially since 2002, with rotating topical modules including dedicated health rounds. Health modules in Round 2 (2004/05) and Round 7 (2014/15) examined health-seeking behavior and social determinants of health inequality, with Round 11 (2023/24) focusing on health inequalities in the post-COVID era. Research database Free registration HDB-0279

PAHO Data Portal (Pan American Health Organization)

Pan American Health Organization (PAHO/WHO Regional Office for the Americas) PAHO maintains a regional health data platform providing access to health statistics and indicators across the Americas, including epidemiological data, health systems information, and public health surveillance data. The portal aggregates health data from member countries to support comparative analysis and regional health monitoring. Research database Open access HDB-0285

Dubai Health Data Sandbox

Sandbox Dubai, Dubai Future Foundation, Dubai Health Authority, Digital Dubai Controlled research environment providing de-identified, longitudinal electronic health records from participating Dubai healthcare facilities since 2018, including demographics, medications, lab results, and encounters. Designed for technology companies and startups to validate health innovations including AI diagnostics, chronic care monitoring, and digital therapeutics. Research database By application HDB-0286

Gulf Centre for Cancer Registration (GCCR)

King Faisal Specialist Hospital and Research Center (KFSHRC), Executive Office of the Health Ministers' Council for GCC States Regional population-based cancer registry established in 1997 collecting harmonized incidence and mortality data across six Gulf Cooperation Council nations (Saudi Arabia, UAE, Kuwait, Qatar, Bahrain, Oman) using standardized coding practices. One of Asia's largest cancer incidence databases, supporting epidemiological research and health policy across the region. Research database Credentialed HDB-0291

District Level Household and Facility Survey (DLHS)

International Institute for Population Sciences (IIPS), Mumbai; coordinated by Ministry of Health & Family Welfare The DLHS has been conducted in multiple rounds (1998-99, 2002-04, 2007-08, 2012-13) as a household survey covering reproductive health, maternal and child health, family planning, and healthcare facility utilization across districts in India. Data from over 720,000 households provide district-level estimates of family planning adoption, maternal and child health indicators, and healthcare service gaps. Research database Open access HDB-0293

Australian Cancer Database

Australian Institute of Health and Welfare The Australian Cancer Database is a national collection of all diagnosed cancers in Australia since 1982 (excluding non-melanoma skin cancers), maintained by the AIHW from state and territory cancer registries. It supports epidemiological research, cancer surveillance, trend analysis, and public health planning through standardized incident and mortality data. Research database Credentialed HDB-0294

National Death Index

Australian Institute of Health and Welfare The National Death Index is an AIHW database containing records of all deaths registered in Australia since 1980, sourced from state/territory registrars, the National Coronial Information System, and the Australian Bureau of Statistics. It is used for epidemiological research and data linkage studies, with access restricted to approved health and medical research through formal application. Research database By application HDB-0378

Boletín Epidemiológico - Sistema Nacional de Vigilancia Epidemiológica

Secretaría de Salud - Dirección General de Epidemiología Weekly epidemiological surveillance bulletin published by Mexico's Directorate General of Epidemiology reporting on notifiable diseases, disease incidence by state, and epidemiological trends. Historical bulletins dating back to 1981 are available for download. Research database Open access HDB-0380

Population Data BC

University of British Columbia Population Data BC operates a collection of linked health and social data covering 5.4 million British Columbia residents, with records dating to 1985 across health care, education, early childhood development, workplace, and environmental domains. Researchers access data through a formal request and approval process, with options for secure onsite facilities and cloud-based analysis environments. Research database By application HDB-0382

Manitoba Centre for Health Policy (MCHP)

University of Manitoba MCHP operates the Manitoba Population Research Data Repository, containing approximately 100 linkable and regularly updated databases derived from Manitoba government administrative records across health, education, social services, and justice sectors. Researchers access de-identified data through a formal application process with support from MCHP's data team. Research database By application HDB-0385

Health Data Research Network Canada

Health Data Research Network Canada HDRN Canada is a pan-Canadian non-profit network facilitating multi-regional health data research, operating the Data Access Support Hub (DASH) with an inventory of over 500 searchable data assets from provincial, territorial, and pan-Canadian sources. Researchers access data through the DASH portal using a single application process that streamlines multi-jurisdictional data requests. Research database By application HDB-0386

New Zealand Cancer Registry

Health New Zealand / Te Whatu Ora Population-based register of all primary malignant diseases diagnosed in Aotearoa New Zealand established under the Cancer Registry Act 1993. Researchers access published data through the cancer web tool or request customized data extracts from the Data Services team for epidemiologic research and health policy analysis. Research database Open access HDB-0388

Finnish Cancer Registry (Syöpärekisteri)

Cancer Society of Finland Registry of all diagnosed cancer cases in Finland since 1953, maintained by the Cancer Society of Finland for epidemiological research. Provides cancer incidence statistics, survival data, and screening program information accessible to researchers through application. Research database Credentialed HDB-0389

Danish National Hospital Medication Register

Danish Health Data Authority Records medication use in all Danish public hospitals and outpatient clinics from 2018 onward, including indication, drug type, pharmaceutical form, dosage, and administration details. Complements the Danish Prescription Registry by providing hospital medication data. Research database By application HDB-0390

Icelandic Cancer Registry

Icelandic Directorate of Health Population-based cancer registry maintained by Iceland's Directorate of Health since 1954, registering all cancer diagnoses according to international standards. Data available to researchers through application to the Directorate's scientific research committee. Research database By application HDB-0393

Registro Nacional de Cáncer de Uruguay

Comisión Honoraria de Lucha contra el Cáncer (CHLCC) The Registro Nacional de Cáncer is Uruguay's population-based cancer registry, operated by the Comisión Honoraria de Lucha contra el Cáncer, collecting incident cancer cases from sources including pathology laboratories, death certificates, the pediatric hematology-oncology center, the Fondo Nacional de Recursos, and the national electronic oncology record. It produces cancer incidence and mortality statistics and atlases for epidemiological surveillance and research, with published statistics available on the registry's site. Research database Open access HDB-0396

China Health and Nutrition Survey (CHNS)

Carolina Population Center, University of North Carolina at Chapel Hill, and National Institute for Nutrition and Health, Chinese Center for Disease Control and Prevention CHNS is an ongoing open cohort survey collecting household, individual, and community data on health, nutrition, and socioeconomic factors across 15 provinces and municipal cities in China, run jointly by UNC's Carolina Population Center and the National Institute for Nutrition and Health at China CDC. It is used to study how social and economic change affects health and nutritional status, and researchers can download the data after registering on the project website. Research database Free registration HDB-0397

Chinese Longitudinal Healthy Longevity Survey (CLHLS)

Center for Healthy Aging and Development Studies, Peking University CLHLS is a longitudinal survey of older adults in China, including centenarians, nonagenarians, and octogenarians, collecting health, demographic, and socioeconomic data, coordinated by the Center for Healthy Aging and Development Studies at Peking University. It is used for research on healthy ageing and longevity, and datasets are distributed through the Peking University Open Research Data Platform to registered users. Research database Free registration HDB-0398

National Population Health Data Center (NPHDC / NCMI)

Chinese Academy of Medical Sciences, under the National Health Commission of China NPHDC is one of China's 20 national scientific data centers, integrating scientific data resources in basic medicine, clinical medicine, pharmacy, public health, traditional Chinese medicine, and population and reproductive health. It is used for data submission, certification, and sharing in population health research, and datasets are obtained through the platform's data application and sharing procedures. Research database By application HDB-0399

National Genomics Data Center (NGDC)

China National Center for Bioinformation, Chinese Academy of Sciences NGDC is a national data center hosting a suite of databases for genomic sequences, genome variations, raw omics data, and biological samples, operated by the China National Center for Bioinformation. It is used for life and health science research and data archiving, and most of its database resources are publicly accessible online. Research database Open access HDB-0400

Unified National Electronic Healthcare System of Kazakhstan (UNEHS)

Republican Center for Electronic Health, Ministry of Health of the Republic of Kazakhstan UNEHS is Kazakhstan's national electronic health infrastructure, maintained by the Republican Center for Electronic Health, comprising population-based registries and claims data collected from medical organizations across the country. It is used for health system management, epidemiological research, and real-world evidence studies, with data for research provided upon application to the Republican Center for Electronic Health. Research database By application HDB-0405

Integrated Data Infrastructure (IDI)

Stats NZ (Tatauranga Aotearoa) Large research database integrating microdata from government agencies, Statistics NZ surveys including the 2013 Census and New Zealand Health Survey. Provides linked longitudinal individual-level data on education, income, health, benefits, migration and justice for approved researchers meeting the 'five safes' governance framework. Research database By application HDB-0406

New Zealand Health Survey

Health New Zealand | Te Whatu Ora Continuous annual survey collecting information on health and wellbeing of New Zealand adults and children since 2011, with annual updates on population health status. Reports on health behaviors, chronic conditions, healthcare access and health equity to inform health policy and service planning. Research database Free registration HDB-0407

Growing Up in New Zealand

University of Auckland A longitudinal study of child health and development tracking children born in 2009-2010 prospectively through multiple assessment waves. Provides life-course data on family, environmental and individual factors shaping child health, development and wellbeing in contemporary New Zealand. Research database By application HDB-0419

Canadian Cancer Registry

Statistics Canada with Canadian Council of Cancer Registries Population-based registry maintained by Statistics Canada containing cancer incidence data for Canadian residents since 1992, compiled from 13 provincial and territorial cancer registries. Provides standardized and comparable incidence data on all primary cancers diagnosed in Canada, used for epidemiological research, surveillance, and health policy. Research database By application HDB-0422

Canadian Chronic Disease Surveillance System

Public Health Agency of Canada A collaborative network of provincial and territorial surveillance systems that tracks chronic diseases by linking health insurance registration files, physician billing claims and hospital discharge abstracts. It provides national estimates of chronic disease prevalence, incidence and outcomes from administrative records, published as open data tables by the Public Health Agency of Canada. Research database Open access HDB-0423

Canadian Community Health Survey

Statistics Canada Annual cross-sectional survey collecting health-related data on Canadians ages 18 and over across all provinces and territories since 2000. Provides national and sub-provincial health data on health status, health care utilization, health determinants, and emerging health issues, supporting public health surveillance and research. Research database Free registration HDB-0424

Canadian Health Measures Survey

Statistics Canada in partnership with Health Canada and Public Health Agency of Canada Biennial national survey launched in 2007 combining household interviews with direct physical measurements and biosamples from -Canadians aged 1-79. Collects data on cardiovascular health, nutritional status, chronic diseases, physical activity, infectious diseases and environmental contaminants through anthropometry, blood samples, urine samples and DNA collection. Research database Free registration HDB-0425

CanPath – Canadian Partnership for Tomorrow's Health

University of Toronto's Dalla Lana School of Public Health with funding from Canadian Partnership Against Cancer A population health study comprising seven regional cohorts with enrolled participants aged 30-74 across all provinces. Follows participants longitudinally with health questionnaires, biospecimens including blood, urine, and environmental exposure samples to investigate how lifestyle, genetics and environment interact to cause chronic disease and cancer. Research database By application HDB-0427

Quebec Integrated Chronic Disease Surveillance System

Institut national de santé publique du Québec (INSPQ) Provincial surveillance system integrating five health-administrative databases covering Quebec's total population since 1996 and updated annually, including hospital records, vital statistics, physician claims and pharmaceutical data. Tracks prevalence and incidence of eight chronic conditions including diabetes, cardiovascular diseases, respiratory diseases, osteoporosis, arthritis, mental disorders, Alzheimer's disease and related disorders using linked administrative data. Research database Credentialed HDB-0428

Health Data Nova Scotia

Dalhousie University, Faculty of Medicine, Department of Community Health and Epidemiology Provincial data repository providing access to linked administrative health records in a secure, controlled environment for health services and health research. Facilitates research and innovation by providing linkable health service and population health databases to researchers while protecting Nova Scotian privacy through pseudonymization and access controls. Research database By application HDB-0429

DataNB – New Brunswick Institute for Research, Data and Training

University of New Brunswick in partnership with Government of New Brunswick Provincial data custodian providing researchers access to linkable person-level administrative datasets from government services including health, social assistance, education, aged care and workers compensation. Operates a secure, controlled-access environment where researchers access pseudonymized data for approved research while providing data-related training in literacy, privacy, ethics, statistics and epidemiology. Research database By application HDB-0431

TUYZE (Türkiye Health Data Research and AI Applications Institute)

Health Institutes of Türkiye (TUSEB) A government research institute focused on health data analysis and artificial intelligence applications in healthcare, operating three specialized departments: Big Data, Medical Decision Support Systems, and Smart Medical Device Technologies. The institute develops data-driven healthcare solutions and conducts research on Turkish health datasets. Research database Credentialed HDB-0432

Iran Cohort Consortium (ICC)

Research Institute for Endocrine Sciences, Shahid Beheshti University of Medical Sciences A virtual network coordinating 44 prospective cohort studies across Iran investigating non-communicable diseases, risk factors, and health outcomes in diverse populations and regions. The consortium provides a unified platform for data sharing, standardized documentation, and collaborative research access. Research database By application HDB-0433

Tehran Lipid and Glucose Study (TLGS)

Research Institute for Endocrine Sciences, Shahid Beheshti University of Medical Sciences Iran's oldest and longest-running community-based cohort study, initiated in 1999 with participants from Tehran's District 13, tracking non-communicable diseases including diabetes, dyslipidemia, cardiovascular disease, and metabolic syndrome over two decades. The study provides longitudinal data on disease incidence and risk factors in an urban Iranian population. Research database By application HDB-0450

Riksstroke

Swedish National Quality Register, Norrlands University Hospital Riksstroke is Sweden's national quality register for stroke care, collecting data on all acute stroke patients from 71 participating hospitals with standardized clinical indicators and long-term outcomes. The registry has been operational since 1994 and provides feedback to healthcare professionals, decision-makers, and the public on stroke care quality and treatment results. Research database Credentialed HDB-0451

SWEDEHEART

Uppsala Clinical Research Center, Swedish Healthcare System SWEDEHEART is Sweden's national registry for acute coronary syndrome, heart failure, arrhythmias, cardiac surgery, and transcatheter interventions,000 new admissions annually. The registry provides real-time feedback to clinicians, enables outcome tracking across Swedish hospitals, and supports quality improvement and research. Research database Credentialed HDB-0452

Swedish Arthroplasty Register (SAR)

Register Centre, Gothenburg The Swedish Arthroplasty Register is a merger of two national quality registers tracking all knee and hip replacements in Sweden since 1975 and 1979 respectively. The register provides long-term follow-up of surgical outcomes, revision rates, and implant performance, with patient-reported outcome measures collected preoperatively and at multiple postoperative intervals. Research database Credentialed HDB-0453

Swedish Rheumatology Quality Register (SRQ)

Swedish Rheumatology Quality Register Association The SRQ is a nationwide quality register for rheumatic diseases including rheumatoid arthritis, axial spondyloarthritis, and psoriatic arthritis. The register collects clinical data on disease activity, treatment, outcomes, and patient-reported measures including pain, function, and quality of life through an interactive patient portal. Research database Free registration HDB-0455

RKKP (Danish Clinical Quality Registries)

Danish Health Quality Institute (Sundhedsvæsenets Kvalitetsinstitut) RKKP manages disease-specific and procedure-specific clinical quality databases covering all patients with specified diagnoses or procedures in Danish hospitals, with mandatory participation for clinical quality monitoring. The registries collect detailed clinical data on diagnoses, treatments, outcomes, and adverse events for quality improvement and research purposes. Research database Credentialed HDB-0456

DANBIO

Department of Rheumatology, Copenhagen University Hospital DANBIO is Denmark's nationwide clinical quality register for rheumatoid arthritis and other inflammatory arthropathies, collecting data since 2000 on patients. The registry records disease activity, treatments with biological and conventional drugs, adverse events, and patient-reported outcomes through both clinical visits and remote patient portals. Research database Credentialed HDB-0458

MoBa (Norwegian Mother, Father and Child Cohort Study)

Norwegian Institute of Public Health (NIPH) MoBa is a population-based pregnancy cohort recruited across Norway between 1999 and 2008, holding questionnaire data and biological samples from mothers, fathers and children, run by the Norwegian Institute of Public Health. Researchers apply to the institute for access to the data for approved studies. Research database By application HDB-0459

HUNT Study (Trøndelag Health Study)

HUNT Research Centre, Norwegian University of Science and Technology (NTNU) The HUNT Study is a population health study covering adult residents of Trøndelag County in Norway, with data collected since 1984 across four survey waves. It combines questionnaire data, clinical measurements and biological samples, and researchers apply to the HUNT Research Centre for access. Research database By application HDB-0460

Norwegian Quality Registries (Medical Quality Registers)

SKDE (Norwegian Centre for Quality Improvement of Health Services) Norway maintains 53 national medical quality registries covering disease-specific and procedure-specific care, each collecting detailed clinical data to monitor treatment quality and improve patient outcomes. The registries provide standardized outcome reporting and comparative data across hospitals through the health atlas portal. Research database Credentialed HDB-0461

Norwegian Stroke Registry

Norwegian Institute of Public Health The Norwegian Stroke Registry is a mandatory nationwide quality registry for all patients hospitalized with acute stroke in Norway. The registry collects standardized data on stroke type, interventions, complications, and outcomes, with results publicly reported through the national quality registry portal. Research database Credentialed HDB-0465

Northern Finland Birth Cohort 1966 (NFBC1966)

University of Oulu, Faculty of Medicine The NFBC1966 is a longitudinal birth cohort of children born in northern Finland in 1966, with follow-up data collected from childhood through adulthood (now age 60). The study contains detailed health examination data, clinical measurements, questionnaire information on lifestyle and environmental factors, and biological samples, with long-term outcomes linked to national health registers. Research database By application HDB-0468

NPHIES (National Platform for Health Information Exchange Services)

Council for Health Insurance, Saudi Arabia Saudi Arabia's centralized health information exchange platform connecting all healthcare providers and payers for standardized exchange of claims and clinical information. The system processes transactions annually with market share of healthcare claims exchange in the Kingdom. Research database Credentialed HDB-0477

Malaffi – Abu Dhabi Health Information Exchange

Department of Health – Abu Dhabi / Abu Dhabi Health Data Services (ADHDS) health information exchange platform connecting public and private healthcare providers across Abu Dhabi Emirate, enabling secure real-time exchange of unified patient records across facilities and electronic medical record systems. The first HIE in the MENA region implementing SNOMED CT and LOINC standards at scale. Research database Credentialed HDB-0500

EMA Clinical Data Publication Portal

European Medicines Agency A publicly accessible repository of clinical trial data submitted by pharmaceutical companies to support regulatory applications for centrally authorised medicines, including clinical study reports, overviews, summaries, study protocols, and case report forms. Researchers and regulators can access published clinical datasets by registering an EMA account, with options for on-screen viewing or download. Research database Free registration HDB-0502

LSHTM Data Compass

London School of Hygiene & Tropical Medicine A curated digital repository of research datasets, code, and tools produced by LSHTM and collaborators, public health, and infectious disease. Datasets include qualitative and quantitative individual-level data with varying access levels; restricted datasets require registration and approval. Research database Free registration HDB-0505

Batut (Institute of Public Health of Serbia "Dr Milan Jovanović Batut")

Serbian Ministry of Health Batut maintains Serbia's health indicators database and disease registries, collecting data on health and healthcare utilization from the national health system. The institute provides a Data Presentation System enabling users to access health statistics and indicators by geographic area and disease. Research database Open access HDB-0506

Public Health Center of Ukraine

Ukrainian Ministry of Health The Public Health Center maintains Ukraine's epidemiological surveillance systems and disease registries tracking infectious diseases including measles, tuberculosis, and HIV/AIDS. The center collects operational epidemiological data through weekly reporting mechanisms and coordinates national immunization programs. Research database Open access HDB-0507

EHIF (Estonian Health Insurance Fund)

Estonian Government The Estonian Health Insurance Fund (Tervisekassa) administers Estonia's social health insurance system and maintains an administrative claims database covering health service contacts, prescription medicines and medical device records. Its data are integrated into Estonia's eHealth infrastructure and the national health portal (Terviseportaal), and researchers apply to the fund for access. Research database By application HDB-0508

SPKC (Centre for Disease Prevention and Control, Latvia)

Latvian Ministry of Health SPKC maintains Latvia's Health Statistics Database and infectious disease registries including HIV/AIDS, tuberculosis, and vaccination records. The center produces epidemiological bulletins and annual statistical reports on infectious and parasitic diseases alongside patient-reported experience measurements and healthcare facility performance indicators. Research database Open access HDB-0518

Oman National Cancer Registry

Ministry of Health, Oman — Department of Non-Communicable Diseases The Oman National Cancer Registry is a population-based registry run by the Department of Non-Communicable Diseases at Oman's Ministry of Health, operating as a national registry since 1996. Its annual Cancer Incidence in Oman reports are published on the ministry's statistics pages and can be downloaded by the public. Research database Open access HDB-0521

Australia and New Zealand Dialysis and Transplant Registry

ANZDATA Registry ANZDATA collects data on the incidence, prevalence and outcomes of kidney failure, dialysis and kidney transplantation from all renal units in Australia and New Zealand. Summary results are published in open annual reports, while patient-level data are released to researchers under a data access application process. Research database By application HDB-0522

Australian Stroke Clinical Registry (AuSCR)

The Florey Institute of Neuroscience and Mental Health AuSCR is a national clinical quality registry that collects data on acute stroke care processes and outcomes from participating Australian hospitals, coordinated by the Florey Institute. Hospitals contribute data for quality monitoring, and researchers request access to the data through the registry's governance process. Research database By application HDB-0523

Australian Orthopaedic Association National Joint Replacement Registry

Australian Orthopaedic Association The AOANJRR collects data on hip, knee, shoulder and other joint replacement procedures from hospitals across Australia to monitor implant performance and patient outcomes. Aggregate findings are published in annual reports, and data are released for research through a formal data request process. Research database By application HDB-0524

New Zealand Mortality Collection

Health New Zealand (Te Whatu Ora) The Mortality Collection classifies the underlying cause of death for all deaths registered in New Zealand and for registered fetal deaths, using death registration data supplied by Births, Deaths and Marriages. Summary statistics are published openly, and identifiable or unit record data are supplied under Health New Zealand's data access rules. Research database By application HDB-0526

Danish Medical Birth Register (Fødselsregisteret)

Danish Health Data Authority (Sundhedsdatastyrelsen) The Danish Medical Birth Register contains information on all hospital births and home births in Denmark, including the course and outcome of delivery and any complications, and is maintained by the Danish Health Data Authority. It serves as a national health indicator source and supports medical research, with data access granted through the authority's research service (Forskerservice). Research database By application HDB-0527

Danish Register of Causes of Death (Dødsårsagsregisteret)

Danish Health Data Authority (Sundhedsdatastyrelsen) The Danish Register of Causes of Death collects information on all deaths in Denmark and is operated by the Danish Health Data Authority. It is used for research, analysis and surveillance, and researchers request access through the authority's research service. Research database By application HDB-0528

Swedish National Quality Registries

Swedish Association of Local Authorities and Regions (SALAR/SKR) and the Swedish quality registry community The Swedish National Quality Registries are a system of individual-based registries that collect diagnosis, intervention and outcome data across many areas of Swedish health care, coordinated nationally with support from SALAR/SKR. They are used for continuous quality improvement, benchmarking and research, and access to data is handled by each individual registry on application. Research database By application HDB-0531

Centre for Victorian Data Linkage

Victorian Agency for Health Information (VAHI), Department of Health Victoria The Centre for Victorian Data Linkage is Victoria's specialist data linkage unit, maintaining the Victorian Linkage Map and the Integrated Data Resource, a collection of almost 40 datasets that are linked monthly. Researchers and Victorian government employees apply for linked de-identified data for approved projects, which is analysed in a secure environment and provided on a cost-recovery basis. Research database By application HDB-0537

CLOSER: Cohort and Longitudinal Studies Enhancement Resources

UCL Institute of Education CLOSER is a UK consortium that harmonises and documents data from major longitudinal population studies, including several national birth cohorts and household panels. Researchers discover variables and metadata through CLOSER Discovery and then apply for the underlying data via the UK Data Service or the individual studies, whose access conditions vary. Research database Credentialed HDB-0538

Growing Up in Australia: Longitudinal Study of Australian Children

Australian Institute of Family Studies / Department of Social Services Growing Up in Australia (LSAC) is a longitudinal cohort study following Australian children and their families from early childhood onward, established 2004 and conducted by the Australian Institute of Family Studies in partnership with the Department of Social Services. It measures child development, family functioning, wellbeing and socioeconomic outcomes to inform child and family policy. Research database By application HDB-0540

Data Linkage Queensland

Queensland Health, Data Services Branch Data linkage service within Queensland Health that routinely links multiple health and human services datasets for approved research, policy development and health service planning. Researchers submit data linkage requests to enhance existing datasets with patient health records and service usage. Research database By application HDB-0541

Sample Registration System (SRS)

Office of the Registrar General, Ministry of Home Affairs, Government of India The SRS has tracked vital statistics—births, deaths, and cause of death—since the late 1960s through continuous field enumeration and independent verification surveys in a representative sample of geographic units across India. The system provides state- and district-level estimates of fertility, mortality, and medical attention at birth or death, released annually with a two-year lag. Research database Open access HDB-0543

Africa CDC Institute of Pathogen Genomics (IPG) – Africa Pathogen Genomics Initiative

Africa CDC (African Union Commission) The Africa CDC Institute of Pathogen Genomics coordinates the Africa Pathogen Genomics Initiative, a continental network building sequencing capacity and data-sharing infrastructure for pathogen surveillance across African Union member states. It supports genomic surveillance of priority pathogens through a network of regional centres, with data access arranged through Africa CDC and the participating national institutes. Research database Credentialed HDB-0544

EUROCARE: Cancer Survival in Europe

Istituto Nazionale dei Tumori (National Cancer Institute), Milan; Istituto Superiore di Sanità (Italian National Institute of Health), Rome EUROCARE is a collaborative study of population-based cancer survival in Europe, running since 1989 and coordinated by the Istituto Superiore di Sanità, which pools and standardises data contributed by national and regional cancer registries. Its published analyses compare survival trends and between-country variation, and aggregated results are freely available from the project website. Research database Open access HDB-0545

National Cancer Screening Register

Telstra Health, on behalf of the Australian Government Department of Health and Aged Care The National Cancer Screening Register maintains a single electronic record for each person in Australia participating in the national bowel, cervical and lung cancer screening programs, and is operated by Telstra Health under contract to the Department of Health and Aged Care. Participants and healthcare providers access screening histories and program functions through an authenticated online portal and integrated clinical software. Geo-restricted Research database Free registration HDB-0561

Humana Healthcare Research

Humana Humana Healthcare Research is the in-house research organisation of the US insurer Humana, studying treatment effectiveness, medication adherence, value-based care and health equity in its Medicare Advantage population using Humana's medical, pharmacy and clinical data. It publishes peer-reviewed studies and works with academic and industry partners through research collaborations; there is no self-serve data licensing. Geo-restricted Research database By application HDB-0566

AIRTUM - Italian Association of Cancer Registries

AIRTUM (Associazione Italiana Registri Tumori) AIRTUM is the association coordinating Italy's population-based cancer registries and maintains the pooled national dataset of cancer incidence, mortality and survival. Aggregated figures are published openly; record-level data are obtained from the member registries under agreement. Research database Credentialed HDB-0567

RIAP - Registro Italiano di ArtroProtesi (Italian Arthroplasty Registry)

ISS (Istituto Superiore di Sanità) / Ministry of Health RIAP is Italy's national arthroplasty registry, run by the Istituto Superiore di Sanità for the Ministry of Health, recording hip, knee, shoulder and ankle joint-replacement procedures and the implants used. It supports device safety surveillance and post-market monitoring; data are made available to participating regions and researchers through the registry. Research database Credentialed HDB-0570

National Registry of Congenital Malformations (RNMC)

ISS (Istituto Superiore di Sanità) / Ministry of Health The National Registry of Congenital Malformations, held at the Istituto Superiore di Sanità, records structural birth defects detected prenatally, at birth and during the first year of life. It underpins national surveillance and contributes to European birth-defect monitoring; data are obtained from the registry under agreement. Research database Credentialed HDB-0574

BIFAP

Spanish Agency for Medicines and Medical Devices (AEMPS) BIFAP is a pharmacoepidemiological database of primary care electronic medical records, operated by AEMPS, the Spanish agency for medicines and medical devices. It is used for drug safety and drug utilisation research; researchers apply to the agency for access. Research database By application HDB-0575

SIDIAP

Catalan Health Institute (Institut Català de la Salut) SIDIAP holds primary care electronic health records from the Catalan Health Institute's practice network, including diagnoses, prescriptions, laboratory results and vaccinations. Researchers apply for access for epidemiological and health services research. Research database By application HDB-0581

GePaRD

Leibniz Institute for Prevention Research and Epidemiology – BIPS GePaRD is a claims database held at BIPS, the Leibniz Institute for Prevention Research and Epidemiology, built from the routine data of German statutory health insurers. It is used for pharmacoepidemiology and health services research; studies are carried out in collaboration with the institute under data protection approval. Research database Credentialed HDB-0583

NICER

National Institute for Cancer Epidemiology and Registration NICER is the Swiss foundation that coordinates the cantonal cancer registries and holds the harmonised national cancer dataset; since 2018 it has been mandated to carry out the tasks of the National Cancer Registration Agency (NKRS) under the Cancer Registration Act. It publishes national incidence and mortality statistics and supplies data to researchers on request. Research database Credentialed HDB-0584

Swiss National Cohort

University of Bern, Epidemiology, Biostatistics and Prevention Institute (EBPI) The Swiss National Cohort is a longitudinal study of the resident population of Switzerland built by linking census records to mortality and migration follow-up. Researchers apply for access for studies of health inequalities, mortality and health policy. Research database Credentialed HDB-0588

CASD (Centre d'Accès Sécurisé aux Données)

CASD The Centre d'accès sécurisé aux données gives researchers controlled access to French public statistical and health datasets inside an isolated secure environment. Access is granted per project on application and all use is audited. Research database Credentialed HDB-0589

INCa National Cancer Registry

Institut National du Cancer (INCa) The Institut national du cancer publishes French cancer data covering incidence, screening, treatment activity and survival. Aggregated indicators are open; access to detailed data runs through application to the institute. Research database By application HDB-0590

Belgian Cancer Registry

Belgian Cancer Registry Foundation The Belgian Cancer Registry is the national registry that collects every new cancer diagnosis in Belgium, coordinating reporting across Flanders, Wallonia and Brussels. Aggregate statistics are published; researchers apply to the registry for data. Research database By application HDB-0591

Netherlands Heart Registration (NHR)

Netherlands Heart Registration The Nederlandse Hart Registratie collects data on invasive cardiac, electrophysiological and cardiac surgical procedures performed at participating Dutch hospitals. It is used for quality monitoring of cardiac care; researchers apply to the registry for data. Research database By application HDB-0594

INEN Cancer Registry of Metropolitan Lima

National Institute of Neoplastic Diseases (Instituto Nacional de Enfermedades Neoplásicas) The Cancer Registry of Metropolitan Lima is a population-based registry maintained by INEN, Peru's national cancer institute, recording cancer incidence and mortality for Lima and Callao. Its analyses are published as periodic volumes and underpin national cancer surveillance. Research database Open access HDB-0595

RITA — Registro Institucional de Tumores de Argentina

Ministry of Health (Argentina) RITA is the institutional tumour registry network coordinated by Argentina's Instituto Nacional del Cáncer, collecting cancer cases reported by participating hospitals across the country. It supports national cancer surveillance; participating institutions and researchers access the data through the institute. Research database Credentialed HDB-0597

Honduras ENDESA Survey

INE Honduras / SESAL (Instituto Nacional de Estadística / Secretaría de Salud) ENDESA is Honduras's national demographic and health survey, covering fertility, child and maternal health, family planning, mortality and nutrition, run by the national statistics institute with the health secretariat. Results and datasets are published openly. Research database Open access HDB-0608

Taiwan Cancer Registry

Taiwan Cancer Registry Center (台灣癌症登記中心) The Taiwan Cancer Registry is the national population-based cancer registry, run by the Taiwan Cancer Registry Center, to which hospitals report new cancer cases through an online reporting system. It publishes annual cancer reports, long-term trend and survival analyses, and offers dataset downloads through its data section. Research database Credentialed HDB-0609

Taiwan Biobank

Taiwan Biobank (臺灣人體生物資料庫) Taiwan Biobank is a longitudinal biobank that combines biological specimens with health and lifestyle data from participants across Taiwan. It supports genetic and epidemiological research; researchers apply to the biobank for access to data and samples. Research database By application HDB-0612

Korea Central Cancer Registry (KCCR)

National Cancer Center, Korea The Korea Central Cancer Registry is the national cancer registration programme run by Korea's National Cancer Center, which began as a hospital-based registry and now compiles nationwide cancer incidence and survival data. Annual statistics are published openly and researchers obtain record-level data through the registry. Research database By application HDB-0618

Sri Lanka National Cancer Registry

National Cancer Control Programme, Ministry of Health, Sri Lanka The National Cancer Registry of Sri Lanka is maintained by the Ministry of Health's National Cancer Control Programme and combines a national registry with population-based registries for Colombo District and Northern Province and hospital-based registries. Cancer incidence data are published through an open data visualisation dashboard. Research database Open access HDB-0619

Bangladesh DGHS DHIS2 (Central HMIS)

Directorate General of Health Services, Ministry of Health and Family Welfare, Bangladesh The central DHIS2 instance of Bangladesh's Directorate General of Health Services is the national routine health management information system, collecting aggregate service and surveillance data from government health facilities. Access is through institutional user accounts. Research database Credentialed HDB-0621

Forschungsdatenportal für Gesundheit (FDPG)

Medical Informatics Initiative (MII), Germany The German Research Data Portal for Health is the central point of contact through which scientists request pseudonymised patient data and biosamples held by the university hospitals of Germany's Medical Informatics Initiative. Researchers run a feasibility query and then submit a data use application that the participating sites review. Research database By application HDB-0623

ERN-RND Registry

European Reference Network on Rare Neurological Diseases (ERN-RND), hosted by University Hospital Tübingen The ERN-RND Registry collects standardised patient data from the network's expert centres across six groups of rare neurological diseases — ataxias, choreas, dystonias, frontotemporal dementia, leukodystrophies and atypical parkinsonism — and is hosted by University Hospital Tübingen. A Data Access Committee reviews requests from clinicians, researchers, health authorities and patient organisations for aggregated or pseudonymised patient-level data. Research database By application HDB-0626

RD-Connect Genome-Phenome Analysis Platform (GPAP)

RD-Connect GPAP The RD-Connect Genome-Phenome Analysis Platform lets authorised users submit, share and analyse genomic and phenotypic data from rare disease patients and their relatives, to support diagnosis and gene discovery, and is an IRDiRC Recognized Resource. Access requires registration and authorisation as a platform user. Research database Credentialed HDB-0633

Scientific Registry of Transplant Recipients (SRTR)

Health Resources and Services Administration (HRSA) The Scientific Registry of Transplant Recipients holds data on all solid-organ transplant programs, organ procurement organisations, waiting lists and outcomes in the United States, administered by the Hennepin Healthcare Research Institute's Chronic Disease Research Group under contract to HRSA. Program-specific reports and search tools are public; researchers request standard analysis files through SRTR's data-request process. Research database Open access HDB-0634

National Cancer Database (NCDB)

American College of Surgeons / Commission on Cancer The National Cancer Database is a clinical oncology database operated by the American College of Surgeons Commission on Cancer, containing hospital registry data submitted by Commission on Cancer-accredited facilities on patients with malignant neoplastic diseases, their treatments, and outcomes. The data are used to analyze and track cancer patients and to provide reporting tools for quality improvement, quality assurance, benchmarking, and surveillance, with access to participant user files available only through an application process. Research database By application HDB-0637

Breast Cancer Surveillance Consortium (BCSC)

Breast Cancer Surveillance Consortium (NCI-funded) The Breast Cancer Surveillance Consortium is a collaborative network of breast imaging registries funded by the National Cancer Institute that maintains datasets, documentation, and tools related to breast cancer screening. It provides publicly available and requestable custom datasets along with risk calculators and documentation to support research on screening delivery, quality, and related patient outcomes. Research database By application HDB-0639

WIdO AOK Research Database

Wissenschaftliches Institut der AOK (WIdO) The WIdO AOK Research Database contains longitudinal claims data from persons insured by the AOK health insurance funds in Germany and is operated by the Wissenschaftliches Institut der AOK (WIdO). It is used for health services research and epidemiology, with access provided through formal research partnerships and project-based requests. Research database By application HDB-0641

HealthData@AT

Gesundheit Österreich GmbH (GÖG) HealthData@AT is a national coordination point for the secondary use of health data in Austria, operated by Gesundheit Österreich GmbH (GÖG), that facilitates access to registries and health system data. It is used for health policy planning and research within the framework of the European Health Data Space. Research database By application HDB-0643

Registro Nazionale Malattie Rare (RNMR)

Istituto Superiore di Sanità (ISS) The Registro Nazionale Malattie Rare is a registry operated by the Istituto Superiore di Sanità that collects epidemiological data on rare diseases from regional and interregional registries across Italy. It is used to support national healthcare planning, estimate diagnostic delays, and facilitate clinical research for rare conditions, with data gathered through the participating regional registries. Research database By application HDB-0645

Registro Nazionale della Procreazione Medicalmente Assistita (PMA)

Istituto Superiore di Sanità (ISS) The Italian National Registry of Medically Assisted Procreation is maintained by the Istituto Superiore di Sanità and monitors medically assisted procreation activities and centers operating in Italy as mandated by law. It is used to produce annual reports on infertility treatments and success rates and to support research on reproductive health. Research database Open access HDB-0646

SISTRA - Sistema Informativo dei Servizi Trasfusionali

Centro Nazionale Sangue (CNS) SISTRA is an information system operated by the Centro Nazionale Sangue that tracks the production, consumption, and exchange of blood and plasma components across Italian regional transfusion services. It supports the national self-sufficiency program and monitors hemovigilance data to ensure transfusion safety. Research database Credentialed HDB-0655

Registro Italiano Fibrosi Cistica (RIFC)

Istituto Superiore di Sanità (ISS) The Italian Cystic Fibrosis Registry collects clinical and demographic data on patients with cystic fibrosis from specialized referral centers across Italy and is operated by the Istituto Superiore di Sanità. It is used for epidemiological characterization and clinical research, with data access available to researchers upon formal application. Research database By application HDB-0656

Open Salute Lazio

Regione Lazio - DEP Open Salute Lazio is a portal operated by the Lazio region that provides interactive health indicators and statistics on the region's population, including mortality, hospitalizations, and chronic disease frequency. It is used by health administrators and researchers for health planning and epidemiological monitoring, with access through the portal. Research database Open access HDB-0657

Registro Nazionale Ipotiroidei Congeniti (RNIC)

Istituto Superiore di Sanità (ISS) The Italian National Registry of Congenital Hypothyroidism collects data on infants diagnosed with congenital hypothyroidism through neonatal screening programs across Italy and is operated by the Istituto Superiore di Sanità. The registry is used to monitor incidence, evaluate screening efficiency, and identify potential environmental or genetic risk factors, with access details not described in the provided text. Research database Credentialed HDB-0658

Registro Nazionale Coagulopatie Congenite (RNCC)

Istituto Superiore di Sanità (ISS) The Registro Nazionale Coagulopatie Congenite is a registry operated by the Istituto Superiore di Sanità that collects clinical and therapeutic data on patients with congenital bleeding disorders from specialized centers. It is used to monitor complications and estimate national requirements for plasma-derived and recombinant products. Research database By application HDB-0660

Osservatorio Nazionale Autismo (OssNA)

Istituto Superiore di Sanità (ISS) The Osservatorio Nazionale Autismo, operated by the Istituto Superiore di Sanità, maintains a database of services and epidemiological data for Autism Spectrum Disorders across Italian regions. It is used to map diagnostic and care services and to support national surveillance of neurodevelopmental disorders, with access details not specified in the provided text. Research database Open access HDB-0662

Base de Datos Clínicos de Atención Primaria (BDCAP)

Ministerio de Sanidad The Base de Datos Clínicos de Atención Primaria (BDCAP) is operated by the Ministerio de Sanidad and contains pseudonymized clinical information drawn from a representative sample of primary care health records across Spain. It is used for epidemiological research and health system planning, with access granted through formal application of a research protocol. Research database By application HDB-0665

RAE-CMBD (Registro de Actividad de Atención Especializada)

Ministerio de Sanidad The RAE-CMBD is a registry maintained by the Spanish Ministry of Health that contains clinical and administrative information on hospital discharges and specialized outpatient care in the public and private sectors in Spain. It is used for clinical research and health system management, with anonymized microdata available upon formal application to the Ministry of Health. Research database Credentialed HDB-0667

CONSTANCES Cohort

Inserm CONSTANCES is a population-based cohort in France operated by Inserm that collects data on health status, lifestyle, and socio-professional characteristics of participants through medical examinations and administrative data linkage. The cohort is designed to provide data for public health research and epidemiological studies. Research database By application HDB-0668

IMA-AIM Databases

Intermutualistisch Agentschap (IMA-AIM) The IMA-AIM databases aggregate administrative health data from the Belgian health insurance funds, covering the insured population, and include longitudinal information on reimbursed healthcare services, pharmaceutical consumption, and socio-demographic characteristics. The resource is operated by the Intermutualistisch Agentschap (IMA-AIM) and is used for analysis of health data, with access details not specified in the provided text. Research database By application HDB-0669

CBS Health Microdata

Statistics Netherlands (CBS) Statistics Netherlands (CBS) provides linkable individual-level microdata, including health datasets covering healthcare costs, hospitalizations, causes of death, and medicine use linked to national registry data. The data are intended for statistical and scientific research and are accessed through a secure remote environment. Research database Credentialed HDB-0670

Netherlands Cancer Registry (NKR)

Netherlands Comprehensive Cancer Organisation (IKNL) The Netherlands Cancer Registry is a national database operated by the Netherlands Comprehensive Cancer Organisation that contains clinical data on newly diagnosed cancer patients in the Netherlands. It is used to monitor cancer incidence, survival, and quality of care, and is accessible for scientific research through a formal application process. Research database By application HDB-0671

PALGA (National Pathology Archive)

Stichting PALGA PALGA is the national network and registry of histopathology and cytopathology in the Netherlands, operated by Stichting PALGA, and contains excerpts of pathology reports. It supports patient care by providing historical diagnostic data to pathologists and facilitates scientific research through its research database. Research database By application HDB-0672

Nivel Zorgregistraties Eerste Lijn

Nivel Nivel Primary Care Database collects routine electronic health record data from general practitioners and other primary care providers in the Netherlands, operated by Nivel. The data are used to monitor health trends, disease prevalence, and healthcare utilization in a sample of the population, with access subject to the operator's arrangements. Research database By application HDB-0675

Perined (Perinatal Registry Netherlands)

Stichting Perined Perined manages the national perinatal registry, which links data from midwives, GPs, gynecologists, and neonatologists regarding pregnancy and childbirth. The database is used to improve the quality of perinatal care through audits, benchmarking, and epidemiological research. Research database By application HDB-0676

National Health Data Portal (Health-RI)

Health-RI The National Health Data Portal is operated by Health-RI and provides a catalog of Dutch health datasets, biobanks, and research tools. It is used to find and request access to health data for research and innovation through a standardized catalog and request infrastructure. Research database Credentialed HDB-0677

PIONEER Health Data Research Hub (acute care)

University Hospitals Birmingham NHS Foundation Trust / HDR UK PIONEER is a health data research hub operated by University Hospitals Birmingham NHS Foundation Trust that contains data from the electronic healthcare systems of organizations providing unplanned or emergency care, including symptoms, investigations, diagnoses, treatments, images, and insights from clinical notes. Researchers and companies can apply to access the data under licence for approved projects conducted within secure trusted research environments, with governance intended to protect patient privacy. Research database By application HDB-0678

HQIP National Clinical Audit and Patient Outcomes Programme (NCAPOP) data

Healthcare Quality Improvement Partnership The Healthcare Quality Improvement Partnership (HQIP) operates the National Clinical Audit and Patient Outcomes Programme (NCAPOP), which collects, analyses and reports data from clinical audits and outcome reviews to support quality improvement in NHS care. HQIP reviews applications for secondary use of NCAPOP data through its Data Access Request Group, with the relevant NCAPOP provider reviewing and releasing the data under a data sharing agreement following approval. Research database By application HDB-0679

Thames Valley and Surrey Secure Data Environment

Thames Valley and Surrey SDE (NHS) The Thames Valley and Surrey Secure Data Environment is an NHS resource for health and care data covering the Thames Valley and Surrey region, operated by local health and care organisations working with staff, patients and the public. It is used to support individual care planning, service planning and research, with access requested through an application process and a data use register. Research database By application HDB-0680

INSIGHT Health Data Research Hub for eye health

University Hospitals Birmingham NHS Foundation Trust / Moorfields INSIGHT is an NHS-led health data research hub operated by Moorfields Eye Hospital NHS Foundation Trust that curates and anonymises routinely collected eye health data, including eye imaging linked to medical records, for research use. Approved researchers from academia, industry and charity sectors access the data through a secure research environment to develop diagnostic tools and study eye disease and related systemic conditions. Research database By application HDB-0681

QResearch

University of Oxford QResearch is a consolidated database derived from anonymised general practice health records across the United Kingdom, operated by the University of Oxford. It is used for ethical medical research, with anonymised patient-level data provided to academic researchers who hold ethical committee approval, and patients may opt out. Research database By application HDB-0682

South West Secure Data Environment

South West SDE (NHS) The South West Secure Data Environment is an online research platform developed by a consortium of NHS bodies, local authorities, universities and research groups across the South West region, and is part of the NHS Research Secure Data Environment Network. It allows approved researchers to analyse routinely collected health and social care data for research such as clinical trials and population studies, while seeking to protect privacy and security. Research database By application HDB-0683

DataLoch

NHS Lothian / University of Edinburgh DataLoch brings together routine data collected as part of people's day-to-day interactions with health and social care services, and NHS Lothian is the lead Data Controller of all data hosted by DataLoch. The resource supports research, innovation, and service management projects intended to enhance health and care services, and access is arranged through an application process described on the site. Research database By application HDB-0684

West of Scotland Safe Haven

NHS Greater Glasgow and Clyde The West of Scotland Safe Haven is a research support service operated by NHS Greater Glasgow and Clyde in partnership with the University of Glasgow that holds routinely collected health data for the NHSGGC population within a Trusted Research Environment. Researchers and innovators must meet legal, ethical and security standards and demonstrate potential public benefit to gain approved access to pseudonymised health datasets for clinical research, trial feasibility and data-driven discovery. Research database By application HDB-0685

Connected West Yorkshire (Connected Bradford)

Bradford Teaching Hospitals NHS Foundation Trust Connected West Yorkshire is a linked health and care data resource operated by the Bradford Institute for Health Research at Bradford Teaching Hospitals NHS Foundation Trust, combining de-identified health records with satellite datasets covering ambulance, social care, education and mental health services. Researchers apply for data access through a governed request process requiring ethical and confidentiality approvals, and the data are used to study health conditions and their wider determinants in support of research and public benefit. Research database By application HDB-0686

UK Renal Registry (UKRR)

UK Kidney Association The UK Renal Registry is a data resource of the UK Kidney Association that holds renal audit and research datasets, including clinical, laboratory, COVID-19, patient measures and quality dashboard data, along with selected linked transplant data items. It is used for audit and research by renal clinicians and academic or clinical organisations, which apply to the registry to obtain aggregate anonymised data or patient-level pseudonymised data under a data sharing agreement. Research database By application HDB-0687

ONS Secure Research Service (SRS)

Office for National Statistics The Secure Research Service is operated by the Office for National Statistics and provides accredited researchers with secure access to de-identified, unpublished data held by the office. It is used to carry out research projects for the public good, with access granted to accredited researchers who apply for an accredited research project and work with the data securely under the Five Safes Framework. Research database Credentialed HDB-0688

Eastern England Secure Data Environment

Eastern England SDE (NHS) The Eastern England Secure Data Environment is an NHS-owned and NHS-run resource that provides secure access to de-identified NHS patient data, including linked datasets such as secondary care prescribing data and diagnostic results, and it is governed through frameworks intended to keep patient data safe. Researchers from the NHS, universities, charities, and commercial companies can apply to access the data for analysis aimed at preventing, diagnosing, and treating disease and improving healthcare, with access granted only to approved researchers who demonstrate a need for public benefit under the Five Safes Framework. Research database By application HDB-0689

North West Secure Data Environment

North West SDE (NHS) The North West Secure Data Environment is an NHS data platform operated through a collaboration of the Lancashire and South Cumbria, Greater Manchester, and Cheshire and Merseyside integrated care systems that provides researchers with access to de-identified health and care data. Researchers apply to use the environment, and approved, trained users analyze data within the system under review by Data Access Committees, with the NHS checking research outputs before publication. Research database By application HDB-0690

North East and North Cumbria Secure Data Environment

North East and North Cumbria ICB The North East and North Cumbria Secure Data Environment is an NHS England-funded regional data access service operated by the North East and North Cumbria Integrated Care Board that provides a controlled space for researchers and analysts to access health and care records for specific projects. Access is tightly controlled, record-level data cannot be removed, and data is used for research and planning purposes under a data access model rather than data sharing. Research database By application HDB-0691

UCLH SAFEHR

University College London Hospitals NHS Foundation Trust SAFEHR is a research collaborative operated by University College London Hospitals NHS Foundation Trust and University College London that provides extraction of and access to anonymised hospital data, including imaging, structured records and free text, for research. Researchers and educators apply through the initiative's data access process to use these datasets, with oversight from a patient and public Data Trust Committee and support from UCL computing services. Research database By application HDB-0692

Imperial iCARE secure data environment

Imperial College Healthcare NHS Trust iCARE is a partnership between Imperial College London and Imperial College Healthcare NHS Trust that operates the Imperial Secure Data Environment, drawing on health and care data from North West London. Researchers access and analyse this data within a protected environment for projects intended to benefit the public while protecting patient confidentiality, under governance and oversight described by the initiative. Research database By application HDB-0693

NIHR BioResource

National Institute for Health and Care Research The NIHR BioResource is a national resource operated by the National Institute for Health and Care Research that holds genetic, health and lifestyle information donated by participants, along with participant samples and recall access. It is used to support research into the diagnosis and treatment of ill health and disease, with participants joining programmes based on health conditions or demographic criteria and researchers accessing samples and data for studies. Research database By application HDB-0694

Health Informatics Centre (HIC), University of Dundee

University of Dundee The Health Informatics Centre at the University of Dundee is a Trusted Research Environment (Scottish safe haven) that holds and links population-based health data for the NHS Tayside and NHS Fife board regions on behalf of the Scottish Government, with a data inventory, linkage and anonymisation services and OMOP mapping. Researchers, trial units and industry partners apply through HIC's governance service for access to the data inside the secure environment; the service is ISO 27001 accredited. Research database By application HDB-0695

European Cystic Fibrosis Society Patient Registry

European Cystic Fibrosis Society (ECFS) The European Cystic Fibrosis Society Patient Registry is operated by the European Cystic Fibrosis Society and collects data from consenting individuals with cystic fibrosis across Europe and neighboring countries through national registries. The information is used to measure, survey and compare aspects of cystic fibrosis and its treatment in participating countries, to deepen understanding of the condition, to improve standards of care, to provide data for epidemiological research and to facilitate public health planning, with access to reports and data available through the registry's website and a research application process. Research database By application HDB-0696

Rhekiss: Rheuma - Kinderwunsch und Schwangerschaft

Epidemiology Unit, Deutsches Rheuma-Forschungszentrum Berlin (DRFZ) Rhekiss is a nationwide German register that records the course of disease during pregnancy and the wish to have children in patients with inflammatory rheumatic diseases, operated by the German Rheumatism Research Centre Berlin (DRFZ) together with the Rheumazentrum Rhein-Ruhr. Physicians and patients participate by enrolling through the study centre and completing questionnaires, with a web app available for patients to fill out forms on mobile devices. Research database By application HDB-0697

The United Kingdom Spinal Muscular Atrophy Patient Registry

John Walton Muscular Dystrophy Research Centre, Newcastle University The UK SMA Patient Registry is a registry for patients in the United Kingdom and Ireland with Spinal Muscular Atrophy, coordinated by the John Walton Muscular Dystrophy Research Centre at Newcastle University. It collects patient-reported outcome measures through online questionnaires, alongside medical information, with patient consent, to supplement data from clinical studies and inform regulatory authorities, clinicians, researchers and pharmaceutical companies about the impact and effectiveness of treatments, and participants register online or by requesting a paper registration form. Research database By application HDB-0698

Cystic Fibrosis Registry of Ireland

Cystic Fibrosis Registry Ireland The Cystic Fibrosis Registry of Ireland is a patient registry for people with cystic fibrosis in Ireland, operated by the Cystic Fibrosis Registry of Ireland company. It collects participant information and publishes annual reports and publications, and researchers may apply for data through a stated application procedure and publication policy. Research database By application HDB-0699

ERN eUROGEN registry

Radboud university medical center (Radboudumc) The ERN eUROGEN patient registry collects data from patients with rare uro-recto-genital diseases and complex conditions, and is operated by Radboud university medical center (Radboudumc) within the European Reference Network ERN eUROGEN. It is used to follow outcomes over the long term, compare care across centres, and support research, with healthcare providers gaining access after ethical and legal approval and signing a data sharing agreement, while researchers, clinicians, patient organisations, policymakers, and companies may apply to use registry data under a data access and sharing policy. Research database By application HDB-0700

RABBIT-SpA: Disease register for axial spondyloarthritis and psoriatic arthritis

German Rheumatism Research Centre Berlin (Deutsches Rheuma-Forschungszentrum Ber RABBIT-SpA is a disease register operated by the German Rheumatism Research Centre Berlin for the long-term observation of patients with axial spondyloarthritis or psoriatic arthritis. It is used to study the effectiveness and safety of therapies over time, with patients included only after informed consent and data stored pseudonymized. Research database By application HDB-0701

Comparative, Prospective Registry of Newly Initiated Therapies for Pulmonary Hypertension

GWT-TUD GmbH - Gesellschaft für Wissens- und Technologietransfer COMPERA is a pulmonary hypertension registry that documents patients with all forms of pulmonary hypertension in which drug therapy is indicated, and it was founded in Germany as the official German registry with participation from centers in other European countries. It is operated by GWT-TUD GmbH and serves to provide real-world evidence that complements randomized controlled trials and to support quality assurance, with data entered by physicians at participating expert centers and patients unable to register themselves. Research database By application HDB-0702

INvestigating SIGnificant Health TrendS in progressive fibrosing Interstitial Lung Disease

GWT-TUD GmbH - Gesellschaft für Wissens- und Technologietransfer INSIGHTS-ILD is an observational registry that documents patients with progressive fibrosing interstitial lung disease and idiopathic pulmonary fibrosis, operated by GWT-TUD GmbH with scientific oversight by a Scientific Advisory Board and funding from Boehringer Ingelheim. The registry collects routine clinical practice data on treatment, effectiveness, safety, and quality of life, and participation occurs through participating pneumological and rheumatological centers rather than by patient self-registration. Research database By application HDB-0703

Lifelines Data and Biobank

University of Groningen Lifelines is a multi-generational prospective cohort study and biobank operated by the University of Groningen that collects, manages and shares data and biosamples from participants in the northern Netherlands, alongside linkage to external sources and additional study options. Researchers apply through a staged process covering application submission, review, contracts and project requirements in order to access the data for studies of disease etiology and risk factors. Research database By application HDB-0704

The UK-Irish Atopic Eczema Systemic Therapy Register

King's College London A-STAR is the UK-Irish Atopic Eczema Systemic Therapy Register, an observational study operated as a project of the British Association of Dermatologists and hosted by the Unit for Paediatric and Population-Based Dermatology Research at King's College London. It follows the medical care of participating patients through their local dermatologists to assess the safety and efficacy of systemic immuno-modulators for atopic eczema and the cost of treating the condition, and patients can join only through a participating centre and their dermatologist. Research database By application HDB-0705

Haematological Malignancy Research Network

Epidemiology and Cancer Statistics Group, University of York (ECSG UoY) The Haematological Malignancy Research Network is operated by the Epidemiology and Cancer Statistics Group at the University of York and provides information and statistics on leukaemias, lymphomas, myelomas, and related blood disorders, including incidence, survival, prevalence, publications, and prognostic tools. Its data are used to inform clinical practice and research, with some sections restricted to NHS haematology staff in the network who hold an active account, while other resources are openly accessible. Research database By application HDB-0706

Clinical Investigation and research for the Rendu Osler Cohort

Hospices Civils de Lyon (HCL) The CIROCO database, maintained by the French National Reference Centre for Rendu-Osler disease at the Hospices Civils de Lyon, contains anonymized clinical data on patients with hereditary hemorrhagic telangiectasia. It is used to study and analyze this patient population in order to improve patient and family care, and access is restricted to the referring physician and their team through a secure internet-based tool. Research database By application HDB-0707

Cooperative European Paediatric Renal Transplant Initiative

Heidelberg University Hospital The CERTAIN registry is a European registry and academic research network for paediatric renal transplantation founded by the Society for Paediatric Nephrology in Austria, Germany and Switzerland and associated with Heidelberg University Hospital. It collects data on the short- and long-term outcomes of paediatric renal allograft recipients for clinical research, quality assurance and patient care, and participating centres access the web application through registered user accounts or a new-user application submitted to the registry headquarters. Research database By application HDB-0708

International Working Group on Neurotransmitter Related Disorders Registry

International Working Group on Neurotransmitter Related Disorders (iNTD) The iNTD Registry is an international patient register for neurotransmitter related disorders operated by the International Working Group on Neurotransmitter Related Disorders, covering conditions such as aromatic amino acid decarboxylase deficiency, tyrosine hydroxylase deficiency, and other neurotransmitter, BH4, cerebral folate, serine, glycine, and GABA related disorders. It is used to study the natural history, diagnosis, treatment, quality of life, and pregnancy outcomes of affected patients, with patients included through participating registry centers. Research database By application HDB-0709

Rare Anaemia Disorders European Epidemiological Platform

Vall d’Hebron University Hospital - Vall d’Hebron Research Institute (HUVH/VHIR) RADeep is a European epidemiological platform for rare anaemia disorders coordinated by researchers at Vall d'Hebron University Hospital and Vall d'Hebron Research Institute, developed within the ERN-EuroBloodNet network and serving as an umbrella for new and existing European patient registries. It maps diagnosis methods, demography, survival, clinical features and treatments of rare anaemia patients to support research and treatment development, with data access governed by a data access committee and a defined request process. Research database By application HDB-0710

Cooperative European Paediatric Transplant Initiative Liver

Heidelberg University Hospital The CERTAIN-LI registry is a European academic research network and registry for paediatric liver transplantation, founded by the Society for Paediatric Gastroenterology and Nutrition in Austria, Germany and Switzerland and based at Heidelberg University Hospital. It collects information on the short- and long-term outcomes of paediatric liver allograft recipients for clinical research, quality assurance and patient care, and participating centres access it through a web application via registered user accounts requested from the registry headquarters. Research database By application HDB-0711

Registro Italiano Sclerosi Multipla e Patologie Correlate (Italian Multiple Sclerosis and Related Disorders Re

The Italian Multiple Sclerosis and Related Disorders Register (RISM) – Research The Italian Multiple Sclerosis and Related Disorders Register is a disease registry that systematically collects demographic, clinical and health data on multiple sclerosis and related disorders, promoted by the Italian Multiple Sclerosis Foundation (FISM ETS) and the Aldo Moro University of Bari through a joint research unit that manages and develops the database. Participating clinical centres record a minimum data set for each consenting subject through an electronic data collection application, with data anonymised and encrypted when transferred to the central server, and the data are used to study the natural history of the disease, produce epidemiological and care-related analyses, identify prognostic factors and study rare conditions. Research database By application HDB-0712

ReMuS Registry / ReMuS, The Czech Republic Multiple Sclerosis Patient Registry / ReMuS, Registr pacientů s roz

ReMuS, nadacni fond (ReMuS) The ReMuS registry is a Czech nationwide multiple sclerosis patient registry operated by the ReMuS endowment fund, collecting data on multiple sclerosis and other neuroimmunological diseases from specialist centres across the country. Data are entered by trained staff with patient informed consent and transmitted from the centres to the registry, where they are used for research and analysis aimed at improving patient care. Research database By application HDB-0713

Global Registry For Novel Therapies In Bone & Endocrine Conditions (GloBE-Reg)

The Office for Rare Conditions Registries (ORC Registries) GloBE-Reg is an international registry project for novel therapies in bone and endocrine conditions, operated by the Office for Rare Conditions Registries (ORC Registries) with stakeholders including patients, professionals, scientific organisations and industry. It collects real-world data on specific drugs to support studies of effectiveness and long-term safety, and clinicians access the registry by creating an account. Research database By application HDB-0714

European Registries for Rare Endocrine and Bone Conditions

Leiden University Medical Centre (LUMC) EuRREB is a set of patient-centered registries for rare endocrine, bone and mineral conditions, operated by Leiden University Medical Centre and involving participating centres across Europe. It collects patient data through registries, condition-specific modules and studies to support collaborative research and care, with access to registry data governed by a data access committee and ethics approval. Research database By application HDB-0715

The MSBase Registry

MSBase Foundation Limited MSBase is an international online registry operated by the MSBase Foundation that collects data from neurologists studying multiple sclerosis and other neuro-immunological diseases. Neurologists join as members to contribute patient data through the iMed data collection tool and to conduct collaborative epidemiological and outcomes research using the combined datasets. Research database By application HDB-0716

Nederlandse Cystic Fibrosis Registratie (Dutch Cystic Fibrosis Registry)

Nederlandse Cystic Fibrosis Stichting (NCFS) The Dutch Cystic Fibrosis Registry is maintained by the Dutch Cystic Fibrosis Foundation (NCFS) and contains pseudonymized medical data on people with cystic fibrosis collected annually from CF centers and published in a public report. The data are used to monitor and improve the quality of CF care, compare centers, and support analyses and research, with data requests submitted to the registry's steering committee via a form obtained by email. Research database By application HDB-0717

Save Sight Registries

University of Sydney The Save Sight Registries are a set of clinical registries operated by the University of Sydney's Save Sight Institute that collect patient outcome data across modules focused on retinal disease, glaucoma, ocular tumours, uveitis, inherited retinal disease, childhood blindness and corneal disease. Clinicians use the registries to enter, track, analyse and benchmark patient outcomes and to contribute to research analyses, with access requested through the site and modules offered free of charge to clinicians and their staff. Research database By application HDB-0718

Auria Clinical Informatics (FinOMOP)

Southwest Finland Wellbeing Services County (VarHa) Auria Health Data Services, operated by the Wellbeing Services County of Southwest Finland (Varha), provides researchers with patient data from specialised healthcare and primary care records and social welfare client data, along with scientific support and a secure processing environment. Access requires a data permit or data request processed by the Research Services Office under the Act on the Secondary Use of Health and Social Data, after which applicants may submit extraction requests for register-based research or aggregated statistical data. Research database By application HDB-0719

Big Data in Healthcare from Aragon

Instituto Aragonés de Ciencias de la Salud (IACS) BIGAN is a technological platform of the Government of Aragon that integrates data routinely collected within the public health system, managed by the Instituto Aragonés de Ciencias de la Salud and financed by the Department of Health and the Aragonese Health Service. It is used by health professionals, managers, trainers and researchers to analyze anonymized health data, with research access requiring prior approval of the research protocol by the Research Ethics Committee of Aragon. Research database By application HDB-0720

Health Data Research Platform of the Balearic Islands (PRISIB)

Balearic Islands Public Health System (IBSalut) PRISIB is the Health Information Research Platform of the Research Institute of the Balearic Islands Health Service (IdISBa), created in collaboration with the Balearic Islands Health Service (IBSalut) to provide a single access point for data from electronic health records and other complementary sources, including primary care, electronic prescription, laboratory, and hospital discharge data. The platform is used to generate knowledge, support research, and facilitate innovation and evaluation in healthcare, with data use for research projects subject to approval by the relevant Research and Ethics Committees. Research database By application HDB-0721

Medicines Intelligence Data Platform

University of New South Wales (UNSW Sydney) The Medicines Intelligence Data Platform is an anonymised linked data resource operated by the Medicines Intelligence Research Program at UNSW Sydney, containing routinely collected Commonwealth and New South Wales health data on Medicare-eligible adults residing in New South Wales, including medicines dispensing, medical services, hospital and emergency department records, cancer notifications and deaths. It is used for population-based studies of the use, safety, costs and cost-effectiveness of prescribed medicines, and access is arranged through the MedIntel team via project discussion, an expression of interest, ethics amendments and a secure research environment workspace with training. Research database By application HDB-0722

French National Registry of Rare Diseases (Banque Nationale de Données Maladies Rares)

Assistance Publique - Hôpitaux de Paris (AP-HP) The Banque Nationale de Données Maladies Rares is a French national registry of rare disease patient data operated by Assistance Publique - Hôpitaux de Paris on behalf of the Ministry of Health, collecting clinical data through the BaMaRa application and hospital information systems. The data are used for public health surveillance and research, with participating hospitals recording data via a connected or standalone mode and researchers requesting access to non-directly-nominative data through a defined procedure. Research database By application HDB-0723

European Rare Kidney Disease Registry

European Rare Kidney Disease Reference Network (ERKNet) The European Rare Kidney Disease Registry is a patient registry operated by the European Rare Kidney Disease Reference Network (ERKNet) that collects data on rare kidney diseases, including enrolment by disease and centre, subregistries, and registry reports. It is used for registry research projects, publications, and data quality management, with access governed by a data access policy and applications handled through the network's membership and governance structures. Research database By application HDB-0724

Extended Cohort for E-health, Environment and DNA

University of Leicester EXCEED is a longitudinal health study operated by the University of Leicester that collects information about genes, lifestyle and environment from participants to examine the causes of long-term health conditions. Researchers use the collected information to study topics such as childhood infections and response to antidepressants, and members of the public can take part online by registering an email address, reading the participant information sheet, completing a consent form and filling in questionnaires. Research database By application HDB-0725

BELpREG: the Belgian pregnancy registry

KU Leuven BELpREG is a Belgian pregnancy registry operated by KU Leuven that collects information on medication use during pregnancy and on the health of mother and child. Pregnant women participate by completing online questionnaires, and the registry uses their reported experiences to study the use and safety of medicines during pregnancy. Research database By application HDB-0726

British Society for Rheumatology Biologics Register for Rheumatoid Arthritis

University of Manchester The British Society for Rheumatology Biologics Register for Rheumatoid Arthritis is a register operated by the University of Manchester in collaboration with the British Society for Rheumatology and the pharmaceutical industry that collects data from rheumatology teams and patient questionnaires on people with rheumatoid arthritis prescribed biologic, biosimilar and other targeted therapies, supplemented by clinical data from national NHS databases. It is used to monitor the long-term safety of these drugs, and health professionals participate by registering patients and submitting data through a login-protected database. Research database By application HDB-0727

Pedianet

Società Servizi Telematici (SoSeTe) / Pedianet network of family paediatricians Pedianet is an Italian network of family paediatricians that has systematically collected data from daily practice since 1998, including diagnoses, prescriptions, referrals and growth measurements for children registered with participating practices. The anonymised database is used for paediatric pharmacoepidemiology and health-services research, with access through a study proposal to the network. Research database By application HDB-0728

Danish Multiple Sclerosis Registry (DMSR)

Danish Multiple Sclerosis Registry, Rigshospitalet The Danish Multiple Sclerosis Registry is a nationwide population-based registry that has recorded people diagnosed with multiple sclerosis in Denmark since 1956, with clinical, treatment and outcome data linked to the national health registers. It is used for epidemiological and treatment-effectiveness research, and researchers apply to the registry's steering committee for data. Research database By application