Directory / Research databases / HDB-0658

Registro Nazionale Coagulopatie Congenite (RNCC)

Istituto Superiore di Sanità (ISS)

HDB-0658

The Registro Nazionale Coagulopatie Congenite is a registry operated by the Istituto Superiore di Sanità that collects clinical and therapeutic data on patients with congenital bleeding disorders from specialized centers. It is used to monitor complications and estimate national requirements for plasma-derived and recombinant products.

Category

Research database

Access

By application

Cost

free

Region

Europe — Italy

Coverage

National

Data types

hematology, rare-diseases, drug-utilization

hemophilia coagulopathy blood-disorders

Visit official site ↗ Report a mistake

Record HDB-0658 · last verified 2026-10-28 · listed in Research databases

Related records

Kenya Medical Research Institute (KEMRI)

Kenya Medical Research Institute KEMRI is a Kenyan health research institute established in 1979, conducting research on infectious diseases, parasitic diseases, epidemiology, and non-communicable diseases with laboratories and extensive surveillance networks. The institute operates the Kilifi Health and Demographic Surveillance System (KHDSS), a Clinical Information Network spanning 25 hospitals, and maintains a biobank of over one million samples. Research database Credentialed HDB-0090

Japan MID-NET (Medical Information Database Network)

Pharmaceuticals and Medical Devices Agency (PMDA) A distributed medical information database established in 2018 aggregating electronic health records, insurance claims data, and diagnosis procedure combination information from healthcare institutions. The database supports real-world drug safety assessments and pharmacoepidemiological research with rigorous quality management standards. Research database Credentialed HDB-0092

National Health Information Database / National Health Insurance Service Data

National Health Insurance Service (NHIS) A research data platform providing access to universal health insurance and health screening data covering over 50 million members of South Korea's national insurance system. The database includes eligibility data, health screening results, healthcare utilization records, prescriptions, and mortality information for the entire insured population. Research database Credentialed HDB-0093

Health Insurance Review and Assessment Service Data (HIRA)

Health Insurance Review and Assessment Service A claims repository containing healthcare reimbursement data from 98% of South Korea's population covering 56+ million patients (2015-2024 in standardized OMOP-CDM format). The database includes patient demographics, diagnoses, prescriptions, procedures, and surgical information supporting health services research. Research database Open access