Rare Anaemia Disorders European Epidemiological Platform

RADeep is a European epidemiological platform for rare anaemia disorders coordinated by researchers at Vall d'Hebron University Hospital and Vall d'Hebron Research Institute, developed within the ERN-EuroBloodNet network and serving as an umbrella for new and existing European patient registries. It maps diagnosis methods, demography, survival, clinical features and treatments of rare anaemia patients to support research and treatment development, with data access governed by a data access committee and a defined request process.