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ERN eUROGEN registry

Radboud university medical center (Radboudumc)

HDB-0699

The ERN eUROGEN patient registry collects data from patients with rare uro-recto-genital diseases and complex conditions, and is operated by Radboud university medical center (Radboudumc) within the European Reference Network ERN eUROGEN. It is used to follow outcomes over the long term, compare care across centres, and support research, with healthcare providers gaining access after ethical and legal approval and signing a data sharing agreement, while researchers, clinicians, patient organisations, policymakers, and companies may apply to use registry data under a data access and sharing policy.

Category

Research database

Access

By application

Region

Europe

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Record HDB-0699 · last verified 2026-10-28 · listed in Research databases

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