Directory / Research databases / HDB-0643

Registro Nazionale Malattie Rare (RNMR)

Istituto Superiore di Sanità (ISS)

HDB-0643

The Registro Nazionale Malattie Rare is a registry operated by the Istituto Superiore di Sanità that collects epidemiological data on rare diseases from regional and interregional registries across Italy. It is used to support national healthcare planning, estimate diagnostic delays, and facilitate clinical research for rare conditions, with data gathered through the participating regional registries.

Category

Research database

Access

By application

Region

Europe — Italy

Coverage

National

Data types

epidemiology, diagnostics, patient-registry

rare-diseases epidemiology public-health

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Record HDB-0643 · last verified 2026-10-28 · listed in Research databases

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